Parkinson's Pain?

[Bailey_Texas]

How to explain to some one what Parkinson's pain feels like. For me it more aggravating than painful. It drives to the point of no return.

[Pelley]

The only real pain (besides the pain in my ass PD in general) has been soreness directly related to dystonic convulsions like my toes curling under worse than the wicked witch of the west in Wizard of Oz. My Forearms and Calves, wrists and ankles... wherever it decides to surprise me at times. Magnesium helps in the form of a product my acupuncturist/herbologist recommended called Natural Calm.

[hanifab23 in reply to Pelley]

please tell me where to order from

[bassofspades]

Isnt the gabapentin helping?

[Bailey_Texas in reply to bassofspades]

Yes it is. I just want to know how to tell some one what PD pain feels like. I don't have any pain now.

[bassofspades in reply to Bailey_Texas]

I would say it feels like i got hit by a truck over and over. Like i have body aches fron the flu. Like i just did a major workout but i didnt. Like i just moved a house full of furniture. Constant spasms.

[bassofspades in reply to bassofspades]

And im glad you dont have any pain! I just started gabapentin too. Hoping to see good results but Dr started ne on a super low dose.

[Greenday in reply to bassofspades]

I had been taking Neurontin gabapentin for non-PD neuropathic pain with good results.

[Bailey_Texas in reply to Greenday]

How much do you take. I am taking 200 mg 3 times a day .

[Bailey_Texas in reply to Greenday]

How much do you take. I am taking 200 mg 3 times a day .

[Greenday in reply to Bailey_Texas]

I didn't take gabapentin for PD. I was prescribed neurontin many years ago for a condition similar to cholinergic urticaria. It seemed that it gradually replaced the intense neuro pain caused by the condition with a numbing sensation. If I remember well I had been taking 1-2x 300mg caps daily for about 2 years until the condition was self resolved. This was the only drug I took that worked for nerve pain. I don't remember I experienced any side effect worth to mention.

[Cbauer]

My pain experience is very much like having the flu. It is throughout my body. Neurontin or Vicodin help. Many people avoid Vicodin because of concerns regarding addiction. I would suggest that you find information about withdrawal symptoms with Neurotin. It sounds very much like withdrawal from illegal and dangerous drugs.

I want to mention that the pain element becomes more problematic in advanced Parkinsons because of “off” periods becoming longer and more often. I feel that it not likely that a person of my age (75) will ever have to be concerned about addiction withdrawal. I ha ve already outlived all the predictions.and averages, etc. I do not think we are statistics. We are people with more control of our own lives than anyone thinks.