Parkinson's bill

[Boscoejean]

"As of January 2025, the "National Plan to End Parkinson's Act" in the US has been passed into law, but it currently does not have dedicated funding allocated, meaning the NIH has not received specific appropriations to implement the Act's provisions; Congress would need to separately appropriate funds to fully enact the plan.

Key points about the situation:

No direct funding:

While the Act is now law, it does not automatically provide funding for its implementation.

Need for further appropriations:

Congress will need to specifically designate funds during the annual appropriations process to support the National Plan to End Parkinson's Act.

Focus on research and care improvement:

The Act aims to intensify efforts to prevent, treat, and cure Parkinson's disease, as well as improve the quality of care for patients. "

It appears that everyone is kind of on their own in finding something that is helpful

[ShakingInMyBoots1]

the first step in the plan is forming the advisory council. Nominations are now being accepted surveymonkey.com/r/YYPW9MX

This is only the first step and not exactly the most promising climate but we should try and be thoughtful in who we nominate and hope the dust settles and there’s still an NIH functioning

[Boscoejean in reply to ShakingInMyBoots1]

so how would this board work if there is no funding?

[ShakingInMyBoots1 in reply to Boscoejean]

ninds.nih.gov/news-events/d...

The council is mandated in the plan as is a report

[Boscoejean in reply to ShakingInMyBoots1]

and you believe this will happen?

[ShakingInMyBoots1 in reply to Boscoejean]

Hope springs eternal

[Boscoejean in reply to ShakingInMyBoots1]

so who do you think would be good people to be on this board? doctors? researchers?others? and how would a person choose who might be the most effective in this respect?

[9299 in reply to Boscoejean]

Definitely some people who actual live with this disease and are motivated in taking some new approaches to finding relief.

[caitilin in reply to 9299]

Yes!

[7springshollow]

I was disappointed in the bill. Not only no funding but no actual plan. Very vague. Even at the time I thought it looked more like a gesture or suggestion than an actual plan for moving forward.

[Despe]

It would be a good idea to leave political comments for the politicians. You and I do not suffer from this horrible disease and I could have invited you to a politically oriented discussion. However, THIS IS NOT A POLITICAL SITE, so please leave out politics here on HU. I have been a HU member a little longer than you, and what I do everyday is to search ways/supplements/repurposed meds, etc to make my hubby's life comfortable. Follow my advice and do the same. This is the way to contribute to this site.

[Boscoejean in reply to Despe]

this is not politics this is a discussion of the possible funding of research

[Boscoejean in reply to Despe]

I do the same thing you do I am always looking for something to improve the situation and a lot of what has been helpful has not involved current research but other resources like this site. One clinical trial going on now that I am particularly interested in is the Photopharmics trial and if the light therapy proves helpful it is a low cost method of bringing improvement the question in my mind is will it get approval

[Despe in reply to Boscoejean]

If and when the globalists allow the scientists to discover THE CURE, then there will be a cure!!

[Ghmac]

Unfortunaly, I doubt this will receive any funding.

[4grandbabies]

Placing the cart before the horse again.

[bassofspades]

I dont know about treatments and cures so much, but I have a feeling that once RFK Jr straightens out the FDA, Im sure that will do a lot on the side of PREVENTION. Just getting those toxins out of the food supply will reduce new incidences of PD by huge numbers. Not to mention other chronic diseases, like obesity, diabetes, kidney disease, hypertension, alzheimers, chronic fatigue syndrome,cancer and on and on and on. Im hopeful. Theres no guarantee.

[Juliegrace in reply to bassofspades]

You’re kidding, right?