Stopping toe curling: I'm begin to have... - Cure Parkinson's

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Stopping toe curling

jenniferdunstan profile image
23 Replies

I'm begin to have

uncomfortable toe curling, right foot only, and can't seem to stop it unless I take that shoe off and shift my weight onto it, while trying to raise my right toe. But it comes back again, randomly. Any suggestions how to stop this?

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jenniferdunstan profile image
jenniferdunstan
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23 Replies
Icequeen10 profile image
Icequeen10

You are probably cramping a bit. I take one 400mg magnesium in the morning and one more at night! This helps my feet.

Shaker33 profile image
Shaker33

This is classic foot dystonia (abnormal muscle tone) that is a Parkinson’s symptom of low dopamine. Bearing weight on it helps. I wore a brace made by an orthotist and wore it with high top sneakers. However, after many years, I decided to start carbidopa/levadopa and then I was able to walk without my foot tightening and toes curled. I had Botox injections for years also which helped Since I started meds, I have no dystonia and can be so active and even wear regular shoes.

nourilo profile image
nourilo in reply toShaker33

How much levadopa are you taking?

rebtar profile image
rebtar

Starting c/l helped me as well. Before that wearing Vibram finger shoes helped.

Bgktoby profile image
Bgktoby

For instant relief of muscle cramps, I take a teaspoon of yellow mustard. I carry little restaurant packets with me always.

M1tz1 profile image
M1tz1 in reply toBgktoby

Interesting. Maybe there's magnesium in mustard. 🙂

Ozziedog2 profile image
Ozziedog2 in reply toBgktoby

I take mustard too!

Cjbro2000 profile image
Cjbro2000 in reply toBgktoby

Bgktoby That’s good to know. I’m wondering what it is about mustard that helps with the cramping. Where did you hear about it as a remedy?

sudoku123 profile image
sudoku123 in reply toBgktoby

Bgktoby,

Good information.

Would you tell me what kind mustard? Just regular?

Thank you,

Ozziedog2 profile image
Ozziedog2 in reply tosudoku123

plain old yellow. I carry the little packets with me. I think it is the turmeric in it, cheap quick help.

sudoku123 profile image
sudoku123 in reply toOzziedog2

Thank you.

Juliegrace profile image
Juliegrace

What meds are you taking? When I went off c/l I had terrible foot dystonia. It ceased when I went back on.

jenniferdunstan profile image
jenniferdunstan in reply toJuliegrace

I'm taking Sinemet one 25/100 every five hours and at bedtime one 25/100 ER . Until last week I was also taking 2 mg Ropinerole For restless leg. My restless leg Went away last week after having a nasty bout of flu and it has not yet returned. Very strange. I do take leg magnesium calcium 3 times A-day with meals And that hasn't seemed to stop this toe curling.

Juliegrace profile image
Juliegrace in reply tojenniferdunstan

Are you noticing any other wearing off symptoms? It might be time to move your IR doses closer together. Also, some forms of magnesium are better absorbed than others and there are possible issues with calcium supplements and PD.

Ozziedog2 profile image
Ozziedog2

My neuro Doc reccommends BoTox shots. Sometimes yellow mustard helps me.

Lionore profile image
Lionore

Before c/ land now occasionally during off periods I have it. I wore toe separators and yoga toes. Since it’s dystonia best to treat with medication.

FMundo profile image
FMundo

May i suggest you listen to the michael j. Fox webinar on dystonia for a more thorough understanding of this problem and the range of options available

jenniferdunstan profile image
jenniferdunstan in reply toFMundo

Thank you I shall. Excellent idea.

Finn3 profile image
Finn3

My husband suffered terribly with toe curling- left side only. He tried everything including toe caps, Dr. Comfort shoes, and rounds of Botox

( helped a little to relax toes) . Total relief came with a TENOTOMIE. A foot surgeon cut the tendons under the toes to to release them. After a short painless recovery, and no effect to gait or balance, he is walking everywhere with no pain and wearing normal shoes once more !

jenniferdunstan profile image
jenniferdunstan in reply toFinn3

Thank you so much for taking the time to Respond. I will talk to my Neurologist about this possibility.

Gwenie profile image
Gwenie

I find sketchers memory foam shoes help for mild relief.

sandmarg profile image
sandmarg

My first symptoms were the toes curling. Very painful n I know what u r going through. Had been suffering since 2012. I had a shoulder operation in November last year and have only had two episodes where the toes would Curl. 3 things that I put it down to is obviously not working for three months getting a good night's sleep and I don't drink anymore. Hope this helps

Missluna69 profile image
Missluna69

informato se si tratta di un problema ortopedico. Per me prendono la forma di un martello e per risolvere visualizzo il piede normale, o meglio, dita a ventaglio e ritornano alla mia posizione normale grazie alla visualizzazione

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