In my last post i told everyone that i had to get rid of my Parkie Dr.
I am not able to see someone else until Jan 2nd.remember i thought i was having some dyskenisias and the Dr was rude to me about my questions and concerns.So now i am having troubles! If i take 3 pills a day 25/100 C/L i have this weird jerking/twisting going on and if i take 1/2 pill 3x day i am having alot of my old symptoms coming back IE: pain stiffness tremors ect... what can i do until my next (new) Neurologist appt in a month? I am afraid to go back to my old self before the meds but this dyskenesia is horrible too! maybe its not dyskenesia? what can i do friends? any advice would be greatly appreciated
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RS313
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Have you thought of trying half a pill 6 times a day so you're taking as much as you were before by the end of the day. I know it's a pain. I did it for a long time and it makes it hard to figure out when to eat and you have to remember to take it every couple hours. I set the alarm on my phone for every two to two-and-a-half hours. I started amantadine a couple months ago and now the dyskinesia is much better. No side effects from it.
Really easy one. Take Half pills more frequently than three times a day probably try I’m going to say maybe every three to four hree hours works for most people
My dyskinesia started 4 months after starting on c/l. It got really bad after about 8 months. I just switched from 25/100 to 10/100 and it's more tolerable. Not gone, but better. We are some of the unlucky minority who get dyskinesia very early on. My mom has PD and went 12 years with little to no dyskinesia although now she gets it severely. Hopefully you will find a neurologist who treats you with respect and has some clue about what he's doing.
When you use the word dyskinesia, could you describe exactly what you’re experiencing?
I have been on Sinemet 25/100 five times a day for the past year?
I start to get restless legs before the next dose and severe muscle tightness in my upper abdomen. Occasionally, I seem to get restless about twenty minutes after a dose but usually goes away and about an hour after each dose, if I’m sitting quietly, I get sleepy. Not loving this drug considering the frequency I have to take it and the sleep disruption but it’s better than not being able to move!
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