Hello my friends,
I recently wrote about meds that my Dr was having me try.
well since then i have tried requip and it was horrible! I was so sleepy that i couldnt function and i had some face flushing as well with it so Dr stopped it then i tried Azilect which i thought would be great but NO it gave me horrible dykenesia which i ahve had problems with since day one with the sinemet IR now taking the ER version which hasnt been controlling my symptoms as well.But cant increase it really because my Dr is afraid i will get worse dyskenesia! I am so afraid now that i wont be able to take anything that will help me in the future and i have only had Parkinsons for 2 years Has anyone had these troubles? if so what did you do? I need help here please.I already know about the B1 that is being used on here and have read alot about it but not really ready to commit to this yet. any help would be greatly appreciated
Have you tried Xadago? It’s an MOAB inhibitor like Asilect but is supposed to reduce dyskinesia, it has for my husband as well as extending his Stelevo so he has minimal ‘ off periods’ now 😀
i HAVE HEARD OF IT BUT IT IS STILL TOO EXPENSIVE MY DR SAID SINCE IT IS STILL FAIRLY NEW
Yes it us new fortunately here in U.K. the Parkinson’s nurse can prescribe it x
Check the manufacturer's site online. They often can assist with cost. Or have your doctor inquire if nothing online. I take Rytary and Neupro; my co-pay would be about $60 each, but with manufacturer's assistance/coupons, I pay $10 for each. I am in the U.S. Don't know about elsewhere.
Frequently there are patient assistance Programs through the pharmaceutical company with reasonable parameters. you could also appeal a denial from your insurance and ask for an acception due to the side effects. Your doctor may Be asked to provide supporting documentation. Also, once you meet your max out-of-pocket medications are often covered at 100%. ( Or get to the other side of the donut hole) Depending on your insurance that could be a lot. But maybe not? I’m sorry, I don’t know what country you’re in ?? information on insurance applies to the United States