Yesterday, my wife, my Mom and my sister went to a beautiful resturant for Thanksgiving dinner. It was just past noon. I had at say 7 am had a small bowl of cereal and at 9:30 am walked for 50 minutes .
At say 11 am I put on a new 8 mg Neupro patch.
For my appetizer I had a cup of Shrimp bisque and we got a bottle of Chardonnay.
Say 5 minutes after the soup and half a glass of wine I got a stomach ache and then got progressively more distressed and dizzy.
I told my wife a was having a problem and she said ; let’s get you out of here. I could barely walk. She and another man supported me and got me to a chair in the lobby. I was dizzy and clammy and sweating. I was in a daze and almost passed out.
I recovered in 10 min and then walked back and had a nice dinner even though I felt only 90% better.
As a precaution I had no more wine. Boo hoo 😂😂😂 as it was a $70 Stags Leap from Napa.
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We told my Mom and sister I had an allergic reaction to the shrimp but I think it was the wine.
Has anyone had this type of situation? Thoughts?
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Written by
Taranto98
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I have similar reactions from time to time. I suspect that you had very little to eat and drink during an active morning then started your glass of wine very early in the meal. If you had eaten more at breakfast, drunk lots of water through the morning then waited until your main course for the wine you might have been able to enjoy it. I wish you a better outcome for your next celebration.
In general for parkies beer is better that wine as it raises uric acid levels and hops can also be beneficial. However in this instance it could also have been the shrimp.
If there was any left I'd have taken the bottle home with me to double check but then that's me (suspected throat cancer from excessive alcohol and meat consumption ).
Am in the middle of a 3 day fast ( stable door horse bolted scenario).
Parkinsonian symptoms somewhat reduced ( apart from possible constipation, but then how would I know?).
Have you ever been diagnosed with postural hypotension (a common autonomic symptom with PD)? That is when your blood pressure falls after standing up (for 3 minutes or so). Blood pressure also falls after a meal, especially with a large meal (this happens for everyone but often causes significant drops in those with PD autonomic dysfunction/hypotension). Alcohol also causes a drop in blood pressure through vasodilation. Warm or hot weather can also do it. So can dehydration (there's quite a list, alas).
I am a reluctant virtual teetotaller at present as I have quite significant postural hypotension. Before I was diagnosed with it I was brought to a state very like you describe after drinking a small amount of alcohol during a meal on a very hot day. The awful dizziness, fogginess, nausea, lurching and staggering worsened over time, and became very disabling. I eventually sought help. There are some drugs, and various avoidance measures, plus what I think of as 'those awful socks' (compression stockings) that you can put into play. Advice sheets are also available from the various Parkinson's groups. I would get yourself checked by your neurologist, and obtain a proper diagnosis and treatment. I suspect this might be your problem.
I discovered that fizzy alcoholic drinks (champagne, prosecco, G&T, etc) are worst for me. I think the fizz means alcohol is absorbed more rapidly.
It is important that you get checked thoroughly because some PD people may have high BP when lying down, and low BP when standing. So the wrong BP raising drugs can be dangerous.
When i was first diagnosed I was told by my Neurologist that the medications for PD cause bad side effects if you have alcohol or eat aged blue cheese. He said avoid them at all costs.
I am now not on any meds as I now know for a fact that none of the meds can cure, or slow down the disease and as time goes on they dont work!!! Azilect MAY slow it. All the meds do is mask the symptoms and give you shocking side effects which are worse than the PD .
I am doing a healthy lifestyle approach too and taking suppliments and 100% natural essential oils which really work! For all of my symptoms including dreaming restless legs etc.
Ask your Neuro when you see him her next time , its the Meds causing wine side effect.
Yes I am taking daily vitality suppliments twice a day they are doTerra brand and are really amasing!
I also use their oils which consist of 100% pure oils that are harvested from the country that each different plant are native to eg , wintergreen is native to Nepall therefore only harvested there. There are a huge range of these oils that are good for everyone to use and when used according to directions , they are very effective WITHOUT side effects !
When I dream those awful dreams I smell wild Orange oil and rub it onto wrists before bed and no more dreaming!!
There is a lot to learn about theses oils and you need the guidence of someone who knows about them . They have a hard cover book you can get that has valuable info regarding many health issues.
The best I can advise is Google doTerra and give them a call.
Its not a cure for PD but they are a million times better than the meds Ive experienced , like Azelect , sifrol er , Madapar.
These drugs gave me severe constipation, dizzyness, faint, restless legs. Lethargic. Weight gain! Spending money, falling asleep while driving.
Since being off them all above symptoms have been reversed!!
There is a lot to learn about these oils the are amazing!
it's rasagaline (azilect) that has dietary restrictions. fermented foods, aged cheeses and wines, pain killers, cough meds. although i never experienced adverse reaction to any foods or wines...i.e. blood pressure spikes.
I was never on sinamet , I was on Sifrol er and azelect and madapar.
That is what my doctor told me, that while on meds dont eat aged cheeses or drink alcohol, thank fully I dont drink any way so I didn't need to worry about accidently consuming it.
I'm interested to know how long ago you were diagnosed Robyn?
I don't think Azilect is an L-Dopa based medication. L-Dopa (replacement) is the mainstay of Parkinson's treatment for me and many others.
I've never taken Azilect, but since being diagnosed over ten years ago, the only side effects from L-Dopa based medications that I've had are dyskinesias. These are not pleasant, but being unable to walk at all is far less pleasant, and that's where I'd ended up when off meds, before DBS.
The postural hypotension, while it might be exacerbated by meds is, in my case, caused by the disease process.
I have tried various alternative medications but, in my experience, melatonin is the only one that helps (with sleep). I stress 'in my case'. This is because we are all different. In my case no side effects of L-Dopa have been shocking. However, the disease symptoms have been devastating.
Alcohol has only recently had a noticeable effect on my blood pressure, and thankfully, blue cheese (or any other food) has never had any detrimental effect. Like others, I'm careful with timing of protein intake.
I absolutely cannot drink white wine since Parkinson's. I take sinemet which controls most serious effects of Parkinson's but I can barely walk if I drink white. I can drink red... It's bizarre and I don't know why but learned the hard way so I steer clear.
I am started taking Azilect and Sinemet two years ago and had a fun hobby of building up the inventory of my wine cellar. After About a year beer started affecting me then after eighteen months just two swallows of wine (red) I immediately begin feeling like I am going into an off period. Now people invite me over for dinner because they know I will bring extra bottles of great wine as I reduce the inventory of my wine cellar. I recently switched to RYTARY which is working very good for me. Soon., I will try sipping some wine to see if there is a change to my reaction to the wine. At this point, I am not expecting a change but it helps to have a little bit of hope.
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