does anyone use medical marijuana (cannabis) for dyskinesias and distonia?

[jujulini]

hi, has anyone found the use of medical marijuana helpful for dyskinesias or distonia? i dont have tremors, but i have severe end-of-dose dyskinesias and early morning distonia of feet and toes. also, is it a long process to get it? i am in ny state. thanks in advance!

[Serenity_finaly-1]

Yes, after dealing for years to treat my pain " to no e vale " I took matters into my own hand and if you are seriously looking in to it... let me know and maybe you can save some money and time.

[Pelley]

I ave found relief from the "inside tremor" or buzzing I have and with aches and pains I relate to dyskinesia with CBD oil imported from Colorado. It helps to have a minor amount of THC's. Not necessarily for a "buzz" factor, but for added relief.

[Serenity_finaly-1 in reply to Pelley]

I have found personally that a 1 to 1 ratio gives me no buzz. I will have to remedy this effect.

[Rosabellazita]

The cbd oil that is legal here has no thc and doesnot help my tremor.

[Bridielena]

Yes, 5 months on it with little improvement if any. I have had some very good days though where I thought, finally, it's working. No, I believe I need the THC component. Impossible to source legally and I'm not into the alternative so I guess I'm stuffed...so to speak.

[jujulini in reply to Bridielena]

do you have dyskinesias and/or distonia?

[Hidden in reply to Bridielena]

CBD oil has 3% of THC. You need both.

[Bridielena]

Yes yes yes .......can overcome the Dystonia by sitting /laying in my tip up chair overnight or if I go to my bed by putting a pillow....narrow.....under knees. This, however, has me trying to get a nights rest on my back which is uncomfortable. Can be done though. I'm better if I sleep in my chair. Last night woke at 5.30 am, no Dystonia but within 1-2 hours of taking MADOPAR the Dyskensia has begun. I have a very painful shoulder problem from it which I have had Cortisone injected into it for relief but it doesn't last.

I haven't had Dystonia at any other time of the day..it seems to rear up after lying flat on my back.

What to do eh?

I am hoping to receive Stem Cell therapy when available here in Australia in the very near future.....look up LCT New Zealand. Of course the cost whilst prohibitive for me to have it done in NZ should be borne by my private health insurer.....Perhaps it's a dream but I'm hanging in there.

[Butchkiss in reply to Bridielena]

Hi Ozzie,

Try Cannabis oil (Sativex) . . . stunning results for Parkinsons tremor. My Parkinson's wife has had the clock turned back 15 years!! Good luck

Butchkiss New Zealand.

[Bridielena in reply to Butchkiss]

Butchkiss i am taking Cannabis Oil. 10 ml at night

What does your wife take?

Ozzie

[Butchkiss in reply to Bridielena]

HI Ozzie,

It comes as a drug called Sativex (Cannabis sativa) supplied from our Pharmacy under Health Dept Supervision. She takes 2 sprays under the tongue am and 1 spray pm. Each spray contains 2.7 mg delta-9 tetrahydrocannabiol and 2.5mg cannabidol (Cannabis sativa). She was prescribed Sativex because the drug Sinemet wasn't working anymore.

In New Zealand the law has been revised so that GP's are now able to prescribe with specialist approval. The effects have been amazing and for me as well being her principle carer ! Good luck Oz.

[Bridielena in reply to Butchkiss]

Oh gosh Butchkiss thank you so much.

Will take info to my GP next week and then to my Neuro by Skype appt with the 3 of us.

I live in a small but popular tourist village called Airlie Beach and no Specialists within a 2 hour drive.

PD is getting so hard to bear that I fear I'm in for a nursing home soon.

Keep in touch. Do have 2 other mates with pd and we boost each other when we meet up and that's this morning.

Onwards and upwards in the Southern Hemisphere.

Ozzie

[Butchkiss in reply to Bridielena]

Ozzie . . I hate to say this but the key to living with PD is to have a GP who is not only PD "friendly" but open to alternative medications. Many GP's are scared of PD patients because they have not been trained in PD related issues (or didn't attend lectures that day . . and I'm not joking). They just throw more pills at the problem. We were lucky because our GP's father had Parkinsons and she understood what my wife was going through and because of that, was open to trialing Sativex.

She cannot believe the results and has discussed my wife's case at a medical conference.

But you must understand that THIS IS NOT A CURE . . . THIS SIMPLY GIVES MY WIFE A GOOD QUALITY OF LIFE to enable her to live with her PD.

Skype (Kiwiblack).

Rgds

[Bridielena in reply to Butchkiss]

Butch I understand .

Terrific GP and terrific Neuro .

Both understand my need for something else but stymied by politics. I don't think I can get the prescription your wife is fortunate to access but shall try.

I'm in mess today because on top of pd I seem to have unpleasant side effects of

an anti depressant which I'm trying to give up.

Anyway they are my problems not yours. My contact for C.Oil may be able to help with

what your wife is on.

If not LCT might be the only way....trouble is 'when'.

I have diabolical Dyskinesia all day from the drug I'm on and Dystonia most mornings from lying prone all night. It disappears fairly quickly after I'm mobile..thank goodness.

Shall let you know if success with my contact re new meds. He doesn't get back to me promptly but eventually I will hear from him.

Ozzie

[Hidden in reply to Bridielena]

I am new to this site, so not sure if I’m doing it right. I just want you to know that I am being treated for TD with CBD oil. I take 1000 mg twice a day! My symptoms are gone, and I had a very bad case. My tongue hanging out of my mouth and I bet it all day long until it bled.

[Butchkiss]

I understand Oz . . . Life is worth it and you are worth it. Never give up, fight like the Wallabies ... ooops maybe that's the wrong analogy, just joking. Keep fighting, Keep you chin up and keep in touch ! B/NZ

[Bridielena]

Shall try. Quite depressed at moment as I sit in my tip up chair waiting for the dawn. Start of meds then. Don't take them through the night which renders me helpless and a feeling of being trapped. I can't sleep in my bed as can't roll over and inevitably Dystonia of the feet when I get out . Sleeping sitting up or rather slightly inclined gjives me more control and no Dystonia. My husband hates me not coming into our bed and I do too but it's the only way now for my comfort. I dread the nights. This Forum does confuse me as too much information and I simply don't know what to do. Most of the people seem to be in the US or England . Their drugs have different names and I am overwhelmed. Can't be bothered comparing ingredients.

Having trouble too putting my thoughts on paper. Losing my once rather good analytical description of my feelings and condition.

Just biding time hoping for something to falll into my lap.

Have too many other problems with pain controlling me and forcing me to find Pain Killers daily.

Thank you for your concern. NZ is a wondrous country. Have been over numerous times . My grandchildren are half Kiwis one in the Army at just 19 and now added concern with him having to obey any command which TRUMP is controlling.

Rambling now so better go. Would love a cuppa too......simple things like that I simply can't do.

Ozz

[irinaby]

tried in 1:7, 1:18, 1:1, 20:1, no effect at all