For the last 4 days for the first time in 11 years i have been Parkinson's free. I hope it last for a while.
All i did was to take my meds every 3 hours vs 4 hours 24 hours a day. I have slept all night except to take my meds.
I exercise 6 times a week eat small meals and try not to worry about anything.
My meds
1 50/200 C/L ext release and 1 25/100 C/L every 3 hours
1 6 mg requip 24 hour release in the morning
1 D3 capsule
2 fish oil capsule
1 daily vitamin
Lucky duck i am still searching fot my right combo. Congratulations.
That's great news Bailey! Your frequency of C/L is similar to my routine, it's remarkable, so I will remark on it. 
I gradually have increased my intake of L-dopa to 150 every 3 hours (part natural source, part sinemet). I also take salmon oil, Cal/Mag, vit D3. Have you ever had a calciferol blood test to see how your intake of D3 raises your calciferol level? If your insurance will cover it t is not a bad idea. Otherwise it is kind of expensive. It helps us PWPD to maintain a calciferol level between 55 to 65 a previous neuro told me. The dose of D3 needed to maintain a supportive level varies individually. I also take a couple of other supplements that support me, morning and evening. I decide last week to quit drinking my half cup of coffee in the morning to avoid the stress effect of caffeine. It's better to wake up slowly anyway I am retired and don't have to be anywhere. My "exercise" isn't going to the gym like you do but my exercise is taking care of my wife, a person with advanced MS. She isn't a large person to lift, still, it is a lot of exercise assisting her, being her care person seven days a week, no day off, often an interruption of my sleep. Every 3 hours is about the way it goes many nights and I do my med around her calls for help with positioning and other things. So it makes me happy that you find a similar routine working out for you because I know how intensely you have sought to improve. Maybe, I am doing the best that can be done for myself? Thank you so much for sharing Bailey. BTW I looked up Dr. O and I believe he is a great choice to be your doctor and I would like him to monitor my case but can't drive all the way there with my wife needing me to stay at home. So, that's another reason to relax and be satisfied with the medication and routine. Keep on sharing Bailey! Have a good Sunday. If you have a pick to win Superbowl mine is Falcons by about 3 points. No favorite between the two but it hopefully will be that close of a game.
You are an inspiration. Blessings to you all
You are remarkable, Buzz1397. I see your post was a year ago. How are you and your wife now?
I’m doing well thanks for asking but my wife’s multiple sclerosis finally took away last October . As for me and Parkinson’s I think I am well managed without prescriptions going forward as long as I can afford those things that I’m using . Since this original post I have added vitamin B one yesterday I was at my neurologists office for follow-up and he said I should keep doing whatever I’m doing because I hardly look like a person with Parkinson’s so encouraging.
That's fantastic!
Bailey, why do you take Requip and is it C/L or immediate?
This regime is quite different to what you took before I think, was it trial and error or did your Dr recommend?
I take Requip for rest less leg and to help fill any gaps the carbidopa levodopa may leave. Both my Dr. and trail and error. Same regime just every 3 hours.
why would you get up at night and take meds? You are sleeping and the PD symptoms go away.
don't sleep all night. I wake in the morning without symptoms.
I don't take any at night and wake up with no symptoms. I wait as long as possible before taking more sinemet so my brain can have a chance to make its own dopamine.
Awesome! Congratulation's!
hi my p.d friends,,i have had pd for about 6 years now..i take 3 madopar tablets a day,200/50..2 madopar100/25 a day,,one azilect 1 mg a day.plus vitamins . i tried sinemet cr 200/50 but found my self going to hospital with the pain..i have restarted taking my madopar its much better now..i exercise 7 days a week..sleep well..a few aches and pains i manage well now.hope this might help someone out there.for digestive balance i take 1probiotics tablet..they now have fridge free ones.they are good..
Did you have stem cells transplant in China, didn't you? Is that helping?
well yes i was there about 6 months ago ion and yes it helped a lot it dont cure it but it did help me im glad i went.as i could feel my face freezing and when i had the treatment i felt much better.if you get in touch with them they will explain it better than me,
Hello. I do the same as you. Except I worry too much. I taking antidepressants too. How do you know you are parkenson free? Ty. Dot
Hello BaileyTexas, I just read with interest your very encouraging 'testimony' dating back 7-8 years now.
I'm interested in knowing how you are doing now in the end of December 2024 ?
Have the gains you mentioned in this post still with you ?
Best regards, Michael.
If you check out Bailey Texas' profile you will find some posts from three years ago
Thank you very much !
Stopping Carbidopa-Levadopa abruptly, harmful?
What do I do now?
Ongentys this medication WORKS!
