I am shocked. I have just retrieved my password and "rediscovered" this site. So much has happened, much of it good. 5 years since diagnosis and I feel better now than then. Where to start? Lots of exercise - non-contact boxing, Nordic walking with poles, Irish set dancing, gym with a trainer - the introduction of Sinemet in November 2015, taken 3 times daily and the completion of the 5 volume "Does it hurt, Granny? and other stories". Went to the World Parkinson's Congress in Portland in September last year. The book was in the Book Nook there. See dawnmay.com . Feeling fit and strong, for the time being, anyway. Grandson and family moved away 
but life had to go on. I shall be back now, checking on you all! 3 years on ... 5 years into PD ... I am waiting for the crash!
3 years on ... I fear my positivity ... - Cure Parkinson's
3 years on ... I fear my positivity ...
So glad you are doing so well. As for the crash just maybe it won't come. They r coming up with new treatments everyday and with all the exercise you do it might not happen. God Bless.
It's so difficult. I see and empathise with those around me whose physical and mental health are declining. Many of them do the same classes and activities that I do. I might just be lucky, I suppose.
Great job! I'll have to check out your books. Sometimes simple information like that written for kids, is the best way for others to learn more about PD. Keep up your positive attitude. Do you take any supplements? Is the non-contact boxIng Rock Steady? I've been with RSB for 10 yrs, diagnosed13 yrs., and I'm doing fairly well, considering. Most people can't tell I have PD.
There isn't a RockSteady boxing group in the UK as far as I know. We're doing our best to design a programme around the needs of the group as new PwPs join us. RockSteady posts lots of videos so our boxing trainer has adapted his training to incorporate challenging physical exercises as well as cognitive tasks.
Great! Do you know Bob Raeburn?
No, I'm afraid I don't. Where is he based?
He's in Sheffield. His trainer is also starting a non-contact boxing class for PwP's. I just found an email that I sent him where I copied one of your posts/replies about starting a boxing class on Nov 4th. I had forgotten all about that. He said Bristol is about 2 1/2 hrs. from where he lives. Hope things are going good for you? Keep pushing each other to work harder & stronger and keep fighting!!
May I ask what RSB is? I am new to this very interesting and helpful site. My husband has PD and we are not doing anything so far except taking mucuna bean powder, 1/2 teaspoon about every 4-5 hours. I really do try to keep him motivated to exercise. He is very depressed and feels hopeless. He found out about a year ago, but must have had it much longer, since he is stiff and shuffles badly, walks stooped over. His tremors are not too bad. He can eat, hold a cup of coffee no problem. He is 69. I read John Peppers book, which made me look up this site here.
@Autumn56,
RSB is Rock Steady Boxing. Don't be scared at its name, it's a non-contact exercise program that uses boxing heavy bags, speed bags and a big variety of other exercises to help PwP's (Persons With Parkinson's) fight the disease. The trainers motivate you and push you a little harder than what ypu think you can do. Because it's strictly for PwP's, you can go there & not feel like everyone is staring at you because everyone there has PD. You can talk to others about symptoms & meds & such just like a support group. They accommodate every level of PD by having different levels of classes and/or different variations of the exercises. I started 10 1/2 yrs ago (diagnosed 14 yrs ago at the age if 46), almost since the beginning of RSB, and I'm sure it has slowed my progression. It's not a cure, but it helps. We have had people quit using walkers, canes & get up out of their wheelchairs. Look up the website and watch some of the videos, especially the one with Leslie Stahl and also see if there's a RSB near you. There are now over 375 affiliates. rocksteadyboxing.org
Let me know if you have any questions.
Sparky...I hope there is no crash
Hell, so do I ... best to be prepared, perhaps 
sparkyparky
Don't prepare for a crash.
That is like preparing for a rainy day. If you prepare for one, you may have one.
Not everyone with PD has a crash.
Blessings, Eva
Isn't that one of the hardest things about what we are experiencing? Waiting for the other shoe to drop. And none of us know how it will progress for us or what it will look like 2, 3, 5 years from now. I am making a concerted effort do not go there in my brain. There are times denial comes in handy.
sparkyparky
We have not met, but welcome back.
With your attitude, I doubt there will be a crash
Eva G
That is such a lovely thing to say, Eva. I can almost believe it
I am in my 11th year better now than anytime in the last 11 years. Getting better every day with no end in sight. Crossfit and Sinemet and requip keep me going.
What is requip?
REQUIP contains ropinirole, a non-ergoline dopamine agonist, as the hydrochloride salt. The chemical name of ropinirole hydrochloride is 4-[2-(dipropylamino)ethyl]-1,3-dihydro-2H-indol18 2-one and the empirical formula is C16H24N2O•HCl. The molecular weight is 296.84 (260.38 as the free base). The structural formula is:
What's "Crossfit?"
Circuit training to us!
Thanks, Jeeves19.
Many people do not crash and decline very slowly or not at all. It helps to be female with tremor, rather than non motor symptoms, as the primary issue. There is no doubt that exercise and a positive attitude are critical. I am two years post diagnosis and feel great most of the time. If I get a period of feeling "off" I am learning that it is OK to dial down my plans for the day a little (not a lot!) and remember that the feeling will pass.
madeinbristol.tv/player/?pl... This is the boxing we do. Bristol News/6pm/Friday 6th January/part 1 after 9 minutes.
This is about the books madeinbristol.tv/player/?pl...
The LowDown/6.30pm/Friday 13th January/part 2
I've JUST come off Skype - doing a Skype "Mindfulness for PD" course with a City University Researcher. I am too fidgety and find I want to laugh at the exercises. I feel I should be boxing instead!
5 years into PD ... I am waiting for the crash! here
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