strange things: strange things happening. i... - Cure Parkinson's

Cure Parkinson's

26,583 members27,899 posts

strange things

Catlou profile image
13 Replies

strange things happening. i take 1/2 allizect 1/2 cl 25/100 and 1/2 cr cl 50/200 4 x day. i also take nac 2x day inosine 2 x day and israpadine. i started taking mannitol in nov. i was feeling better and sleeping better. this monday my only sister passed from pneumonia complications so lots of stress which always makes things worse. also this week i cant sleep after about 3 hoes i want to crwal out of my skin my teeth hurt and my mouth gets weird like i'm sucking on it to draw sliva like a speed freak would. it also quivers and i talk funnier. am i taking to much in meds? are all the supliments working or is there too much stress. i dont know what to do.

Written by
Catlou profile image
Catlou
To view profiles and participate in discussions please or .
Read more about...
13 Replies
parkie13 profile image
parkie13

I'm very sorry about your sister. must be stress. Mary

Beckey profile image
Beckey

Cat, my feeling is that anxiety, sorrow and stress are in a way drugs in and of themselves. They have a whopping impact on us physiologically. The death of an only sister is a huge loss. I'm so sorry to hear it. Nearly 20 years later, I'm still not entirely over the death of one of my sisters. You have a lot of shared history with a sibling. Take it easy on yourself.

I tried inosine. I got a lot more out of my workout, but it also made me feel shaky and nervous (at least I think it was the inosine that did that!).

My sympathies.

p-p- profile image
p-p-

Catlou, please see a doctor immediately ! You can call your local pharmacist to find out if there is conflicts with your med.s and any other pills you are ingesting . Seek treatment right away. If necessary go to your nearest ER hospital. Your PD.friend, Pam

Catlou profile image
Catlou

Thank you but my blood pressure is fine so i dont think im in trouble that way. im just wondering if im getting too much dopa.

vincea profile image
vincea

Catlou . . . my sympathies to you. I think that you are over-medicated, but don't take my word for a decision. See your doctor now, or go off your meds for a few days to see if things get corrected . . . personally, I'd talk to my doctor. Blessings . . .

PDWife60 profile image
PDWife60

Catlou, I suggest you take your supplements to the pharmacist and ask if any of them could cause the symptoms you are experiencing. About 10 years ago, I popped positive for Amphetamines. It was something in an over-the-counter natural diuretic I was taking. Also, make sure your doctor knows all the supplements you are taking. Perhaps it is an interaction of drugs. I agree with the others; it also could be the stress affecting you.

hopedope profile image
hopedope

I am so sorry to learn about your sister. Try to keep calm, take deep breaths often and tell yourself that your sister's passing is causing you to be stressed and it is affecting your PD. We must try to avoid stress and exercise or just move around the house doing things as much as possible. I guess I would call the doctor's office too (as others suggested) to let them know what's happened too but I would be wary of them telling you to take another pill of some kind. You do seem to take a lot of things already and you've only been diax for 2 years I think. My favorite thing to take is a probiotic from the drug store. If you don't take one, try it. Or just try Activa brand yogurt--you can buy them right away and just have one for dessert or with breakfast. It may calm you because you'll think it will help.

Catlou profile image
Catlou in reply tohopedope

I didn't take the half azilect today and I feel a little better. The israpidine is for high blood pressure but it's in a clinical trial 3 for Parkinsons. The others are just supplements. Do you think half a CL and half a CL controlled release are too much?

hopedope profile image
hopedope in reply toCatlou

Since you asked me, I will say that my first neuro prescribed 1 whole c/l (sinemet 25/100) three times a day at 6am, 11am, and 4pm. He said the CR sinemet was not needed yet. I have been on that regime for almost 2 years. Now I go to a movement disorder neuro and she agrees with this regime and hasn't had me change it. I have no tremors, gait or balance problems yet and I hope I don't get them for a long time yet.

Astra7 profile image
Astra7

Sorry to hear that. It is an awful feeling - the crawling out of skin one. I know you are taking a load of things, but I suggest you try some disprin. It seems crazy but I have found it helps with that tense feeling.

Then I think you need to see a dr for some anti anxiety meds just to get you through this awful time. The anxiety is crippling and you really need your sleep.

Hikoi profile image
Hikoi

Catlou, did you ever find out what the cause was ?

Catlou profile image
Catlou

No. I try not to hit down time. Started rytary which we got approved 61.25/645 3xday thats not Working right had to go to 4xday which to me defeats the purpise of taking in it. Still does not

Catlou profile image
Catlou in reply toCatlou

Work right. Can add 1 siniret a day ? Why I as ? Can't get this right.

Not what you're looking for?

You may also like...

Too much C/L

Hi Everyone I'm on a very low dose of C/L (2 x 1/2 a day of 12/50). It has had a very good effect...
Chockly profile image

Rasagiline and Depression

I have been taking Azilect and then the generic Rasagiline for 12 years after being diagnosed at...
jlmerten profile image

Update on Sinemet Nausea and Fatigue

I originally posted on this topic about 2 weeks ago (post copied below). I finally got in touch...

Is anyone else taking rhodiola rosea?

Hubby has been taking rhodiola now for a month, 1 per day for 2 weeks then 2 per day. He is doing...
LAJ12345 profile image

High Dose CL ?

I am often puzzled by the high dose her neurologist/ movement specialist has her taking. I have not...
Furch profile image

Moderation team

See all
CPT_Aleksandra profile image
CPT_AleksandraAdministrator
CPT_Anaya profile image
CPT_AnayaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.