Feedback

[elinavar]

I read about pd being triggered when someone underwent a knee replacement I have my knee surgery 2 years ago and dx with pd recently. Just wondering how many of you are on the same predicament?

[Fredzu]

I had exactly the same circumstances. July, 2015 for the knee replacement and May, 2016 for the PD diagnosis.

I don't know What preceded what? It may be there is no connection at all. I do know that the symptoms that I had were attributed to the knee.

Are there any research about this matter?

To complicate things, I had a problem with pain pills when I was having surgery on the knee.

Right now the knee is fine. I power walk daily for 3 miles.

How are you doing? Quite amazing to have the same experience around the same time.

Best,

FJohn1

[elinavar in reply to Fredzu]

I am on Azilect and c/l .I am exercising daily even with the tendon pain associated with the knee surgery. I really wanted to know if there are other folks with same situation like us.

[Fredzu in reply to elinavar]

I think we are pretty much the same.

[weekapaw in reply to Fredzu]

Hi,

I'm new here. I was diagnosed 2 1/2 years ago. The machine is a DAT-Scan. Anyway, What nobody ever mentions is that PD is present at least 10 years before there are symptoms . I'l bet if everone on this list, took a full back MRI it would show significant damage, due to gravity and PD. bringing out orthopedic problems that develope probable brings out other pd symptoms, as does Emotional stress.

[racerCP]

I experienced my first tremors immediately, the day after surgery on hysterectomy and oophorectomy and DX'd shortly thereafter. Something about general anesthesia, trauma can bring on PD my M.D. doctor said.

[Scottie99]

This is really interesting. I had a knee replacement in February which went OK ish but just after the op, I knew I wasn't walking properly.

I visited do my GP to discuss something else a month ago and she sent me to a neurologist because of my gait and a few other symptoms.

The neurologist tells me I have symptoms of Parkinsonism and has ordered a (I think it's called) a Spect scan to confirm if if have Parkinsons or not.

This is my other point. Other than my gait, I don't really have any other outward signs, so should I go for the scan? I don't want to be diagnosed with this disease. Is there any advantage in knowing early as, if I don't have any other symptoms, I won't be given any medication.

My wife is adamant that my abnormal walk online started after my knee replacement.

[Astra7 in reply to Scottie99]

I didn't think they could really confirm PD. It would have been better if it had never been mentioned if you have virtually no symptons, but now it has been I guess it is better to know. There is some evidence that azilect slows down progression, although it is questionable.

How is your sense of smell?

[JWebb994 in reply to Scottie99]

The onliyl

[JWebb994 in reply to Scottie99]

My Parkinson was only recognized by my Parky walk as well. A few little tremors that no knew about except me. No Surgeries related though. I walked a lot and danced a lot after I got the walking down to a science . Latest problem is that I broke my left hip falling from a rolling chair. Stay away from them! Now I have one leg that is longer than the other. I wear a jogging shoe on the shorter one and only a sock and a very soft slipper on the longer one. In another week I will get a shoe that will make them even. I used to say, i dont need to lose weight, I just need to be taller! 😊Now I am!

[jrg54321]

I blew out my meniscus in September 2015, had orthoscopic surgery in October 2015, a blood clot immediately after surgery, and diagnosed with PD in March 2016. I think I might have blown out my knee because my right leg wasn't moving exactly how it was supposed to anymore doing intense exercises (power t25). The orthopedic surgeon told me to see a neurologist when I mentioned the shaking in my right arm.

I recently realized that my limp isn't due to the surgery, and that I can step more normally if I concentrate on my walking form. It makes everything feel much better.

Being diagnosed has helped explain a lot of idiosyncrasies in my life. I probably need to make sure I don't stereotype myself though. This disease seems pretty unique to each person that gets it.

[Hikoi]

It can take years for PD to develop. By the time we get diagnosed we have lost about 70% of our dopamine producing cells and are managing on a small amount. It is quite possible that knee problems are actually connected to having PD. It can affect joints. The classic is a sore shoulder, i had mine for 8 years pre diagnosis. Once i started sinemet it improved.

[DianeF]

My PD symptoms began several days after my first knee replacement(Sept 2014 age 54) with tremors. The tremors stopped after about a month.I was so nauseous they gave me every anti nausea med they could think of. I felt like I had been poisoned for about 4 months. People at work kept telling me to straighten up and that I wasn't the same as I was pre-surgery. In March I saw my GP and she noticed I was moving very slowly and stiffly referred me to a neurologist. He quickly diagnosed me with Parkinson's and I had the diagnosis reconfirmed by a movement disorder specialist. I believe my Parkinson's was drug induced initially and I am one of the lucky 16% to go on to have full-blown Parkinson's. My suspicion is that I may have developed Parkinson's much later in life but the surgery,anesthesia and medications all exacerbated the disease . Believe it or not I went on to have a second knee replacement last fall but did it with a spinal block instead of general anesthesia and fewer pain medications and fared much better.It has been a year and a half and I'm still having difficulty excepting the diagnosis but I am moving forward as best I can. Since my diagnosis I have encountered a number of people who told me they believed Parkinson's was brought on by a surgery. I've had lower back problems all my life but right now my upper back is what's really bothering me and no one is able to tell me if it's related to the Parkinson's or not. It is quite the mysterious disease.

[Astra7]

Did you need any blood? ( just testing my pet theory that PD is related to too much or too little iron).