Wonky leg!

[jeeves19]

Hi everyone. Hope you're all doing as well as can be expected. I have a bit of a weird thing going on and I can't really fathom it, so wondered if anyone had had anything similar? When at home i go on a stationery bike. It's a recumbent one. Been bashing away on this since for ever but doubled my efforts when I thought I'd got PD. In the last 4 months my affected leg tends to skew outwards when cycling. So the unaffected side remains straight but the knee on the PD leg starts moving outwards. In a half hour session, both are straight for about 15 mins but then as time goes on the right foot starts twisting in the pedal strap and the knee juts out to the side. I can't seem to control this and am a bit perplexed with it. Conscious thought doesn't seem to be able to control this wonkiness! Any experiences welcomed.

Thanks

[parkie13]

Nothing surprises me.

[Juliegrace]

I have something like that that happens when I walk. Mine is caused by dyskinesia. It pulls my hip out and makes my left foot pigeon-toed (toes turned in). It does not bother me on the exercise bike though.

[andrehypnotic]

What about strapping that weaker leg up?

[1182]

Same problem. My right side has slowly and painfully has been shifted down. Resulting in a right side difficulties.

[jeeves19]

Luckily I get no pain but it’s difficult for sure !

[Bashert0302]

I have something similar when I walk. Within about 15 minutes my foot cramps up and makes my whole side screwy. And it gets painful. May post about it. I'm sorry this is happening. I'd also love advice about what to do when it starts to go awry, because exercise is supposed to be so good. Do you push through it? Between the pain itself and my anxiety about the experience, I'm wrecked after it happens. Good luck to you!

[Bashert0302]

Are you on meds? Have you noticed any difference when you try it at different times of the day?

[jeeves19 in reply to Bashert0302]

Yes I’m on meds and I guess that when I lower my doses it happens more. No pain but annoying.

[lesleyd]

Sounds like dystonia - not uncommon in Pd. I used to get a touch of the 'John Wayne' in one leg after I'd been walking for a couple of mins. The only thing that helped was to turn the toes out - and walk like half a duck - but once I lost focus/concentration the pain and buckled leg returned quick enough. I haven't suffered for over a year now, I take my meds. 30mins before I go out for my morning walk.

[jeeves19]

Yes. I suspect it shows that meds do have an important role

[Smokeypurple]

The only thing I want to ask is whether it is a good idea to push through? I also cycle at home - like you in an effort to remain healthy enough to run my kids, home etc - we're trying to get the brain connections whirring and keep the body functioning as 'normally' as possible. But if we exercise with the body (knee on your case) askew will we be training it that way? Might it be better to do 2 x 15mins at different points in the day to encourage the knee to be in line?

[jeeves19 in reply to Smokeypurple]

Where are you in the Uk?

[Smokeypurple in reply to jeeves19]

SE London.

Week looks like this :

Indoor cycling as many times as possible (5ish)

Yoga x1

PD warrior core exercises x4 (ish)

PD Kinetics boxing (new thing)

Nordic walking when I can spare the time (once a fortnight ish)

PD choir at King's hospital when it is happening

Where are you?

[Kia17 in reply to Smokeypurple]

Do you have dystonia when walk or pedal fast?

[jeeves19 in reply to Kia17]

Not when walking and unsure about speed issue on bike. Are you thinking that greater speed improves the dystonia?

[Kia17 in reply to jeeves19]

Not in short-term but over time the greater speed reduces the dystonia.

[jeeves19]

Interesting thought. More challenges eh?

[jeeves19]

Brum unfortunately otherwise we could have a cup of tea. Don’t do TOO much!?

[Smokeypurple in reply to jeeves19]

Absolutely! Got a cold this week so nothing doing/doing nothing...

[Kia17]

Jeeves19

It seems to be dystonia. I do indoor cycling 3-4 times a week and had the same issue of curling my left toes down and wonky leg but I started taking Magnesium and Vitamind D and they significantly reduced the dystonia.As you possibly might know I am also taking high dose of vitamin B1 as well. Aximagnesio with 6 different magnesium salts is the best magnesium I ever tried and almost reduced my dystonia by 70%.

[Bashert0302 in reply to Kia17]

I'm in the US, but I THINK? I can order aximagnesio? Never heard of taking B1. What is a high dose?

[jeeves19]

Wow that is very impressive. Sadly whilst I’m pretty up on all of the supplements my taking of them is a bit piecemeal? I don’t take them sequentially or consistently. I down a few if I remember sort of thing! I think that I got - and am still - a bit disillusioned with them after taking them religiously for about a year and noticing that I was deteriorating slowly but surely. I have a good product named Natural Calm which is good and btw, I’ve just started Restore Gold which is 16 pills daily 😕

[Kia17 in reply to jeeves19]

I took the Natural Calm for some time but didnot help me. Please let us know how you get on with the Restore Gold.