Hi everyone. Hope you're all doing as well as can be expected. I have a bit of a weird thing going on and I can't really fathom it, so wondered if anyone had had anything similar? When at home i go on a stationery bike. It's a recumbent one. Been bashing away on this since for ever but doubled my efforts when I thought I'd got PD. In the last 4 months my affected leg tends to skew outwards when cycling. So the unaffected side remains straight but the knee on the PD leg starts moving outwards. In a half hour session, both are straight for about 15 mins but then as time goes on the right foot starts twisting in the pedal strap and the knee juts out to the side. I can't seem to control this and am a bit perplexed with it. Conscious thought doesn't seem to be able to control this wonkiness! Any experiences welcomed.
Thanks
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jeeves19
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I have something like that that happens when I walk. Mine is caused by dyskinesia. It pulls my hip out and makes my left foot pigeon-toed (toes turned in). It does not bother me on the exercise bike though.
I have something similar when I walk. Within about 15 minutes my foot cramps up and makes my whole side screwy. And it gets painful. May post about it. I'm sorry this is happening. I'd also love advice about what to do when it starts to go awry, because exercise is supposed to be so good. Do you push through it? Between the pain itself and my anxiety about the experience, I'm wrecked after it happens. Good luck to you!
Sounds like dystonia - not uncommon in Pd. I used to get a touch of the 'John Wayne' in one leg after I'd been walking for a couple of mins. The only thing that helped was to turn the toes out - and walk like half a duck - but once I lost focus/concentration the pain and buckled leg returned quick enough. I haven't suffered for over a year now, I take my meds. 30mins before I go out for my morning walk.
The only thing I want to ask is whether it is a good idea to push through? I also cycle at home - like you in an effort to remain healthy enough to run my kids, home etc - we're trying to get the brain connections whirring and keep the body functioning as 'normally' as possible. But if we exercise with the body (knee on your case) askew will we be training it that way? Might it be better to do 2 x 15mins at different points in the day to encourage the knee to be in line?
It seems to be dystonia. I do indoor cycling 3-4 times a week and had the same issue of curling my left toes down and wonky leg but I started taking Magnesium and Vitamind D and they significantly reduced the dystonia.As you possibly might know I am also taking high dose of vitamin B1 as well. Aximagnesio with 6 different magnesium salts is the best magnesium I ever tried and almost reduced my dystonia by 70%.
Wow that is very impressive. Sadly whilst I’m pretty up on all of the supplements my taking of them is a bit piecemeal? I don’t take them sequentially or consistently. I down a few if I remember sort of thing! I think that I got - and am still - a bit disillusioned with them after taking them religiously for about a year and noticing that I was deteriorating slowly but surely. I have a good product named Natural Calm which is good and btw, I’ve just started Restore Gold which is 16 pills daily 😕
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