Meds : Hi, if u were taking a med for... - Cure Parkinson's

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Meds

joe45 profile image
22 Replies

Hi, if u were taking a med for 2years and u came off it abt 3, weeks ago how long till its out of ur system completely , just wondered if anyone knows ?

Thanks joe

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joe45 profile image
joe45
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22 Replies
isis6361 profile image
isis6361

Depends on the drug. Odd question as every drug is different as is every person. Depends if it's short acting long acting . Amphetamine based? So many if buts and may be's

joe45 profile image
joe45 in reply toisis6361

Hi its the neupropatch I was on 12mg now 0

JohnPepper profile image
JohnPepper

Hi Joe. Not being a doctor means that I cannot answer this question. I can only tell you about my experience in this matter. I have said in my book that I only ever took eldepryl for ten years and then came off it. I was shown a copy of my neurologist's records of my 1st two years after diagnosis. He states that I was put onto sinemet and symmetrel. I obviously came off those two meds when he put me onto eldepryl. I only became aware of this last month.

I was therefore able to come off sinemet twice in my life, in 1994 and 2002, and symmetrel once in 1994, without any trouble.

Good luck

John

joe45 profile image
joe45 in reply toJohnPepper

Thanku

stanlee profile image
stanlee

I would say you're clear now most drugs don't hang around for long

joe45 profile image
joe45 in reply tostanlee

Hi , oh great ok thanks

stanlee profile image
stanlee

which drug are you coming off?

joe45 profile image
joe45

It was neupropatch

joe45 profile image
joe45 in reply tojoe45

I was on 12mg now on 0

stanlee profile image
stanlee in reply tojoe45

not heard of that one ,why have you stopped taking it?

joe45 profile image
joe45

Oh cause they were causing a lot of problem s like really bad anxiety and falling slurred speach etc

The neuro gave me the ok

joe45 profile image
joe45

Oh cause they were causing a lot of problem s like really bad anxiety and falling slurred speach etc

The neuro gave me the ok

michaela13 profile image
michaela13

Hi Joe- it takes a while to get off that patch. My neuro had me go off too fast and i had that bad reaction. Remember i told you about it? 2 week should be good. I think it took me quite a while before i felt better.

joe45 profile image
joe45 in reply tomichaela13

Hi Michaela,

How u doing ? Yeah I think it's out of my system by now

Do u feel any better?

cabbagecottage profile image
cabbagecottage

mY husBand came off the patch after six years without any trouble and was much better a while after stopping , no reaction . I am considering doing the same thing with Sinemet !

joe45 profile image
joe45 in reply tocabbagecottage

Hi

Yeah Im feeling better without patch !

Why do u want yr husband to come off sinermet ?

stanlee profile image
stanlee

I think everyone reacts differently to these drugs ,I feel so much better since ditching Pramipexole

joe45 profile image
joe45 in reply tostanlee

Hi stanlee.

What side effects did it give u ?

cabbagecottage profile image
cabbagecottage

Although he has been taking them for the last six years I have never felt they improved him in any way . They increased the dose gradually and still nothing , it was then they added the patch , It is difficult to judge really because you don't know how much if any is the progression of the illness .

About 30 mins after taking the Sinemet O can see him slowing down , vacant and Dystonic stiffness jaw drops and difficulty coordinating the tongue . Then it's nearly time to take the next dose ,., There is , much improvement in the relaxed tremor,and although his drool is still dreadful he is not bothered at night with it collecting in his throat and choking m he also i

doing the sudden switch offs .

joe45 profile image
joe45

Hi thanks for reply,

Are you going back to see ur neurologist again to get his meds changed ?

Hope he'll feel better soon

tessielala profile image
tessielala

I had to get off the Neupro patch because I was so allergic to the adhesive on the patch. My doctor never said how to stop the patch and I went on Ropinirol the next day (2mg).

I now take 3mg.

tessielala profile image
tessielala in reply totessielala

I have episodes of difficulty breathing when my Sinemet wear off. Very difficult to breathe. My doctor doesn't think it's from the Sinemet. I went to Mayo Clinic in Jacksonville Florida and saw a neuro specialist there last month. The Doctor at Mayo increased my Sinemet to 2 tablets every 3 hours starting at 6 am. It had me very jumpy when it would wear off prior to the next dose and they told me to reduce the Sinemet to 1 1/2 and not go back to the 1 at each dose. You have to wean yourself off a lot of meds and this is one of them also. I also am on Amantadine 100mg, 1 twice a day. I would probably be doing fairly well if the Sinemet would work properly. I am convinced that that is the problem. Both doctors say it is probably anxiety which I feel it isn't. How come after the Sinemet kicks in I can breathe again??

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