how do i get help for my brother i seem to be hitting a brick wall

[zegal]

[parkie-Al]

Hi Zegal,

what help are you looking for ? think that what yo have to decide first.

Has your brother got a PD nurse?

Email me on my private email and i will try and help if i can

Regards

Parkie Al

[zegal in reply to parkie-Al]

thanks parkie yes he has a nurse but not seen her yet however has a hospital appointment next week so i will be asking lots of questions

regards

zegal

[zegal]

hi parkie-al

on the letter from the hospital they have got the name of a nurse but he is not due to see her yet but every where i turn i seem to hit a brick wall both my brother and his wife have learning difficulties she is epileptic with very high blood pressure i want to make their bathroom safer as it is very small and he has already fallen when getting in tryed OT said if he can get out of chair and bed then nothing they can do however i will not give up and if necessary i will write to minister of health and the media i never give up a fight but any help would be very gratefully received i worry that a serious accident could happen regards zegal

[soup]

Hi Zegal,

You are in the UK according to your profile so I suspect your brother is there too.

Don't worry about appointments with Parkinson's nurses, if you have hit a crisis point phone their service. Get the Parkinson's nurse to refer you back to the OT.

Contact your Information and Support worker and he will help point you to the services you and your brother and sister-in-law might access

parkinsons.org.uk/local_to_...

This is the link to the correct page on the Parkinson's UK website. Put it into Google and search for it. From that page you will be able to look for the correct contacts.

Message me if you need to chat. I log on about once a day.

Sue

[zegal in reply to soup]

thank you sue i will try this site he has an appointment at the hospital next week so i will be having a chat with the people he see's

yes we were both born in UK our parents and rest of family are spanish just me bruv and my children born in uk

[jillannf6]

HI

A SOCIAL WORKER IS HELPFUL BTU THEY R V OVERWORKED IN THE UK

OT MIGHT HELP U BUT I FOUND WORK ON THE BATHROOM HAD OT EB DONE B4 I COULD MOVE INTO THE APARTMENT WHERE I NWO LIVE (iCOUDL NTO MANAGE A SHOWER OVE RBATH ANY MORE )AND NEEDED A RAISED TOILET AS I CANNOT GET UP FROM A SITTING POSIITON IN A LOW CHAIR

I HAVE PSP BY THE WAY

LOL jILL

[zegal in reply to jillannf6]

dear jill

thank you for reply i have tried the ot and because my brother can manage to get up off a chair and bed he cannot get anything he has a very small bathroom wash basin and toilet next to bath all i want is for his bath to be removed and a shower cubicle be put in he has already fallen getting into the bath once and this is before we knew he had parkinson his wife is epileptic and has thrombosis and has had many falls when out and has been taken to hospital she also has learning difficulties it has cost be over £60 in phone calls to get nowhere and it dose not help when i know people who scam the system which makes me so angry what is PSP ? thank you for your reply

[jillannf6]

hi zegal

psp stands for PROGRESSSIVE SUPRA NUCLEAR PALSY - GOOGLE IT OR CHECK MY ABOTU ME TO FIDN OTU MORE

IT IS ONE FO THE HTINGKS I HAD NEV ER HEA RDOF B4 GETTIGN THE DIAGNOSIS IN 2010

BUT I AM STILL HERE AND LUCKILY UNLIEK YORU BROTHER HAVE HAD THE ABILITY (£)TO DO OUT THE APARTMETN IWHT MY PARTNER AS WE NEED IT

ARE YOU IN THE SOUTTH OR NORHT OF THE COUNTRY?

FUNDING SI A REAL PROBELM FOR LOCAL AUTHORITIES

I HAVE A CARER COMIGN IN MOS TDAYS BUT GET OT APY THE DIFFENRFENC EMYSELF AND NEED MORE CARE RATHE RTHAN LESS

LOL JILL