Taking full responsibility - Crohn's and Colit...

Crohn's and Colitis Support

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Taking full responsibility

2 Replies

I was diagnosed with crohn’s 12 years ago. I’m under a gastro consultant if/when I have a bowel flare up, but if I get crohn’s in joints or mouth etc I have to see other consultants.

My “gripe” is that there are no crohn’s or UC consultants who take full responsibility for the complete disease. I get passed from pillar to post and hear about inter department funding (which is not my problem). I just want to be fixed and have a better quality of life.

2 Replies
dbar126 profile image
dbar126

Good morning, I'm dealing with the unfortunate sores and sour mouth, throat and tongue as we speak :( My Gastro doctor has ordered me the nystatin swish and swallow which does help but seems to take time. I have " reactive I arthritis" due to chrons and my joints ache and hurt alot! I am currently on plaqunil for that (new to me so not sure if helping or not). I understand your struggle completely.

in reply to dbar126

Thanks for the reply. Nice to know I’m not on my own

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