Looking for more information? - Living with a Stoma

Living with a Stoma

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Looking for more information?

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Ostomy Lifestyle was award the Information Standard in February 2012, and we hope that our website can provide you the information you need on many topics including the following:

What is a stoma:

ostomylifestyle.org/content...

Living with a stoma:

ostomylifestyle.org/content...

We also have an online directory of groups, suppliers and events, all designed to support you in your journey with a stoma: ostomylifestyle.org/content....

If you would rather speak to someone on the phone about your issues, don't forget that our trained helpline advisors have experience of stomas, and are on hand should you need them. Just call us on 0800 7314264 between 10am and 3pm Monday to Friday.

Unrelated to Ostomy Lifestyle, there are many organisations out there who can help with living with a stoma, and also the conditions behind the stoma. Below is a list of just some of these organisations:

'Diversions' Family Support Network

Website: diversions.org.uk

Description: We provide support for families with young people who have bladder or bowel diversions / dysfunctions.

Beating Bowel Cancer

Website: beatingbowelcancer.org

Description: Beating Bowel Cancer is a leading UK charity for bowel cancer patients, working to raise awareness of symptoms, promote early diagnosis and encourage open access to treatment choice for those affected by bowel cancer.

Breakaway

Website: breakaway-visits.co.uk

Description: Breakaway Visits is the only England & Wales based charity offering residential activity breaks for young people from 4-18 with bowel and/or bladder diversions and dysfunctions and their families.

Crohn's and Colitis UK (NACC)

Website: nacc.org.uk

Description: Crohn's and Colitis UK aims to improve life for everyone affected by Inflammatory Bowel Disease (IBD), the most common forms being Crohn's Disease and Ulcerative Colitis. Together these conditions affect about 250,000 people in the United Kingdom.

Good Digestion Show

Website: thegooddigestionshow.co.uk/

Description: This unique event will showcase how to live with food intolerances e.g. gluten, dairy, lactose and wheat free diets.

Macmillan cancer support

Website: macmillan.org.uk

Description: Macmillan Cancer Support improves the lives of people affected by cancer. We provide practical, medical and financial support and push for better cancer care.

Red Lion Group

Website: redliongroup.org

Description: The Red Lion Group is a UK pouch support charity for people who have, or are considering having, an ileo-anal pouch. The pouch support group was founded in 1994 by a group of patients and staff at St. Mark's Hospital in London and gained charitable status in 1997.

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