Painful skin: Does anybody else suffer... - Charcot-Marie-Too...

Charcot-Marie-Tooth UK

1,697 members668 posts

Painful skin

cath123 profile image
4 Replies

Does anybody else suffer with a burning sensation like you have real bad sunburn? Keep gettin it on upper back and arms - feel like ripping my clothes off. Even hurts when any contact is made. My partner feels guilty for inflicting pain if he hugs me on a bad day.

Written by
cath123 profile image
cath123
To view profiles and participate in discussions please or .
4 Replies

Hi Cath, Yes I get similar painful skin, have been for about 5 years now, it can be almost anywhere on my body but is mostly on legs or arms and will last for a day or two. It happens once or twice a month.

flopsybunny profile image
flopsybunny

Yes Cath, I do too. It always affects my feet and legs, and can be excruciating. When it's really bad I get a bag of frozen peas (kept specially for this!) and gently stroke my feet/legs with it. This can be really soothing and takes my mind off the burning, and usually helps it settle down.

I'm not sure whether this would be helpful to you if you can't bear anyone to touch your affected skin. I do hope you find some way of soothing the burning as I know it is just horrible.

Primary-Bursar profile image
Primary-Bursar

Hi Cath

I can't say my skin in painful but I have found recently that my lower arms, legs and back are itching quite a lot.

CMTerSam profile image
CMTerSamVolunteer

Hi Cath,

I get some burning in my shoulders but I think it is a different thing to yours.. I feel the burning in my muscles not my skin and for me i think it is "overuse" burn even though I haven't really done anything!

How is it feeling now?

Sam

x

Not what you're looking for?

You may also like...

Does anyone suffer from sleep apnea?

Hi, about the time I was diagnosed with CMT 1a (10 years ago) my wife noticed that I stopped...
HorshamMalc profile image

Feeling Devestated and Low

I was diagnosed with CMT last week and I'm not coping well it had deteriorated rapidly over the...
Eddie84 profile image

Applying for a Blue Badge - has anyone tried this under the stricter conditions since 2012 ?

My walking has deteriorated quite a lot over the past year, so I am really struggling now. I am...
Amanita profile image

Poor help from NHS and doctor

Hi, I have the belief I have CMT, I have been to see a Neurologist who took blood samples but has...
djl45 profile image

i have just recently been diagnosed

it all started when i was in year 8 where i had pains but not so bad it was bearable and then...
diagnosedcmt profile image

Moderation team

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.