Hi my names chris I live in West Yorkshire and have been surfing this site and cmt-uk to gain knoledge and Information about my condition.
A little about me,
About 4 years ago (age 21) I noticed that my calf muscles were on the small side so long story short I went to see a doctor about it not long after seeing the doctor (who had refered me for a nerve conduction study) I found Info about cmt that seemed to fit my issues ! I was scarred and shocked that this could be the case and hoped it was not.
But last year after many tests and seeing many specialists I was diagnosed with Distal hereditary motor nuropathy / CMT by this time I had come to terms that it was looking more and more likely to be the case.
In the years leading up to being diagnosed I had been married and had a baby boy who is now 14months old I have recently informed my work and they seem to be supportive only time will tell.
I'm fairly happy but being quite active I now feel a little self concious about the size of my legs as I'm 6ft4" so they are a big part of my if you will parden the pun. I go to the gym 3 times a week and have gained good upper body strength which helps getting about up and down etc.
If anyone wants to chat please do as it would be great to hear from people in the same boat.