I am nearing 70 years of age and have had CMT all my life. Mostly I have been able to accept the limitations this placed on me and work around them, but a new one has pounced on me that is causing me real, and serious, concern.
I have been to the GP (our practice sadly does not have anyone with any particular knowledge of CMT...or indeed, any knowledge at all it would seem) so I thought I should come straight to the experts...other people who might know what I am talking about.
The problem started in my ankles, they feel swollen when they are not, they then started to feel numb with loss of feeling or sensation, this is moving slowly upwards in the lower leg and also affects the feet.
I now have the starting of the same sensation of numbness in my wrists, lower arms and shoulders.
Can anyone tell me, firstly, are this symptons consistant with CMT, are they "manageable," ie. with medication and how I should proceed to minimise the problems they are starting to cause me.
The GP has referred me to a specialist but says it could take "a long time"...I don't feel happy waiting a long time when this is progressing too quickly for my liking and so could do with some serious advise.
Any comments would be appreciated.