Acala and Obin: After 5 months on Acala twice a... - CLL Support

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Acala and Obin

Mining_Guy profile image
6 Replies

After 5 months on Acala twice a day and having just finished my Obin infusions, my lymphocyte count is now 3.6, down from 280 before my treatment began. Obin killed my leukemia cells so fast at the beginning I got hospitalized for 36 hours with TLS as my kidneys were overwhelmed with dead cancer cells. Wanted to share some good news with the group here. I will probably be on a new clinical trial in June to wipe out any remaining cancer with the hope of a very long remission. I will keep everyone posted.

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Mining_Guy
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6 Replies
Thursday45 profile image
Thursday45

Such good news for you, that’s a very pleasing result.

stevesmith1964 profile image
stevesmith1964

HiGlad to here it's going well. I had the same treatment 4 yrs ago when I was diagnosed at stage 4. I was in Umrd within 250.days. I am now on Acalabeutinib twice a day , monthly bloods stable and 6 monthly Umrd check still holding.

Keep.safe

Mining_Guy profile image
Mining_Guy in reply tostevesmith1964

Awesome!

Dragonfly2007 profile image
Dragonfly2007

Thank you for sharing, brilliant to hear your good news.

0148 profile image
0148

congrats on making it through obin and on the great improvement in your numbers. Am on Acala and halfway through obin myself.

I’m curious you plan on entering a clinical trial next June. Do you know which trial you’ll be on?

Mining_Guy profile image
Mining_Guy

I am not sure the trial is public information at present. Will know more next minth. Very new.

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