2 Years in.....

[MovingForward4423]

So I am two years in after coming off treatment due to an SVT attributed to Ibrutunib. I still have a painful spleen that comes on with infection or vaccines.

Other than that I am doing well, bloods are normal. I hope to get another 2 years until I need to go back on treatment.

It's odd, I still get some fatigue, struggle with insect bites and bacterial infections. I guess its always there....

[Provence]

I am now 16 months off my treatment with Ibrutinib, which was halted because I developed intolerance to it. I feel very well, my blood counts are all good , but I do still have my strong reactions to mosquito bites and I do get tired more easily than I like. I do feel that that is the way my life is and that it will not change and so I must make the most of living within those limitations. It can be a drag since there are a lot of mosquitoes and other biting insects around here in summer, and even sitting in a car as a passenger exhausts me after just a few hours, but I am so grateful to have this break in the medication and to continue to feel so well. I feel it is better to accept what is and to be grateful for the blessing of a pause in the medication.