CLL GUY

[bandit44]

Hi- 68 yr. old man, had CLL for 6 yrs. now. was put on Imbruvica at first. side effects were very bad. Shingles, ( felt like a truck ran over my leg) had 2 lymph glands removed. etc. after 3 yrs. it just stopped working. got very sick, emergency room twice, then they put me on Venclexta, which has been working very well so far. My numbers are good right now. very happy about that. but I know it might be only short term and I might get sick again at any time. Wishing everyone the best. Take care and God bless. by for now. Bandit44 (northern USA)

[Richard_TX]

Stay positive. The newer medicines are so much better. Wishing you the best.

[DriedSeaweed]

Hello, if you lock your post it will keep it invisible to the world wide web and more people may respond.

Just remember to keep an eye on clinical trials where you could potentially get your next treatment drug completely free.

[Katie-LMHC-Artist]

It sounds like you have been through a lot! Honestly, I try and stay in one day at a time. Staying attached to the fear and the “what ifs” can keep us in a state of anxiety. I’m not perfect! I can have my days but then I go into a state of gratitude and think….Im still here! The sun is shining! The weather is warming up! The birds are singing! I hope your journey remains stable! Stay strong! 😍

[bandit44 in reply to Katie-LMHC-Artist]

Hi Katie- Good advice, thanks, I am still here and the sun is shining. And looking forward to playing with my grandkids. and I am going from there, take care , all the best from Wisconsin.

[Katie-LMHC-Artist in reply to bandit44]

👍I’m “Boston Strong”! Getting warmer here! Enjoy your grandchildren! What joy!!!

[Stamphappy]

Hello from the middle of Wisconsin 😃! Bandit44, I hope you can find peace in knowing we're all here for you. Keep us posted! Today, I'm grateful to be making maple syrup for my family, enjoying our sunny day, and sneaking puppy cuddles between syrup batches. Tonight, it's 🥞 for supper 😋 with fresh homemade syrup.

A treat, once in a while, is good for the soul. Puppy cuddles are calorie free! Lock your post- you'll get more responses 😊