PEMF devices may have a stimulatory effect on the diseases they have been tested on. In the one study I found looking at cancers specifically, two of the cancer cell lines studied in test tubes were stimulated, which isn't what one wants. Others appeared to have no effect.
There aren't any well controlled studies I could find regarding CLL.
I've seen literature suggesting it is useful in bone fractures. At least one study noted that using it in osteoporosis patients with ovarian cancer had their cancer stimulated with certain wavelengths.
So unless and until there is documentation of any wavelength that is beneficial for CLL, maybe not do it. The first link I have, notes one needs PMBC's in the blood for beneficial effect. Whether or not ones hematopoetic system is producing an adequate amount of these cells would be a factor. Since we vary in ability to produce things like neutrophils, or platelets, monocytes, etc. within the umbrella CLL diagnosis, this therapy may turn out to be useful for only a subset of us. And any wavelengths that are beneficial have yet to be ascertained.
Thank you do much Sofia, for your reply. I will read through your links. The math I am looking at has the possibility to have a personilized program which would be made by a specialist on your decease. You will have a special card to put in the computer of the bed.
I would ask how they plan to "personalize" this program. Part of the problem with CLL is that unlike many other cancers, ours is extremely heterogenous. Solid tumor cancers are not as heterogenous as CLL, and may be why there can be success stories using this treatment for those cancers.
The second link I used indicated that the single cell line of that specific B cell lymphoma, was not affected by the wavelengths used in that study. Yet also in that study, the wavelengths used helped 2 of the cancer cell types grow, instead of killing them off.
I am reading more where this treatment is being theoretically considered in conjunction with drug delivery systems, to get the drugs into the tumor microenvironment, for heterogenous cancers like ours. It's not just "killing off the cancer cells" there is an entire tumor microenvironment supporting their growth. Unlike a solid tumor that starts extremely localized and may only later metastasize.
There were 195 studies entered looking at pulsed electromagnetic therapy for various diseases when I searched the clinical trials database, but none of them were for CLL. So IDK how they could "know" which, if any, wavelengths could help you. Remember, just because something works in cells growing in a test tube, does not automatically mean it will work in the human body. They could biopsy some of your cancer cells, and test hundreds of wavelengths to see if any of them killed the cells instead of making them grow, but that may not translate to working in vivo once they try to do it in your body. Similar to how drugs that work in a test tube, don't work as intended once people swallow them.
I understand and what you say, Sofia, makes a lot of sense. I am trying to understand if this technology could help me and this is why I was inquiring about it. And I did the right thing writing on this blog, because you are giving me lots of very precise information.
I really thank you for all the time you have given me.I will keep you posted .
After my review of online studies for the potential use of PEFM for CLL, I agree with SofiaDeo . Evidence for their use is primarily with respect to post surgical recovery. I couldn't find any research specific to lymphoma, (CLL is one the chronic Non-Hodgin's Lymphomas), let alone CLL. So how can someone configure a PEFM device to heal CLL if there is no research available to guide recommended program settings?
If you ask the company selling the PEMF Math device for online references about the use of their device for CLL and share that here, I'll give you my feedback. The only research I could find was in relation to myeloid blood cancer. CLL arises in the lymphoid stem cell line. There are around 200 different leukaemias and lymphomas.
Most of the research used to promote natural cures is based on microscope observations of what happens to cancer cell lines when they are exposed (in vitro research). From my assessment of proposed natural cures for CLL over the past 15 years, an extremely common mistake made when recommending a natural treatment, is basing it on research for a myeloid leukaemia cell line. CLL cells naturally undergo apoptosis. The CLL tumour growth just happens to exceed the death rate. The result is that it has been very hard to develop cell lines for CLL that researchers can purchase for in vitro research, so they commonly use the much more readily available cell lines for other leukaemias, nearly always a myeloid stem cell line.
Thanks so much, Neil. Yes, what you and SofiaDeo are saying makes a lot of sense to me. I will speak soon to the doctor who uses this technology and I will ask him if he has already used it on CLL . I will also tell him about your findings and ask him some precice explanation on the topic I am so glad to have join this group. I am receiving so many interest replies and getting a bit more clear on what I should do. Thanks again
Hello Nutella. Yours is an interesting first post on here for sure. It feels almost like an advertisement for the medithera system.
It’s great you have a healthy lifestyle. I’m not sure what stagional foods are, but if you do have cll as you write, your healthy diet evidently didn’t prevent you from getting cll. Nor will your diet or lifestyle, on its own, stop the progression of your cll.
If I might ask, are your promoting the medithera system to treat cll? If so, can you give us any evidence that it does? If not, I’m confused what you are posting on a Cll forum. Is it just to say that you don’t believe in the advice of doctors and the benefits of modern medicine but rather that we should explore treating our cll with magnets?
Sorry if I sound skeptical. We have a very vulnerable community here with many wishing to be cured without having to take some of the difficult meds we have to take. Every now and then we will get a poster with a first time post that starts out with the poster claiming they are able to stay healthy without modern meds and the post ends up with a reference to some product or book we can buy to heal us.
Hi Cajunjeff! You know, I am Italian and English is not my first language so, maybe, I could have been misunderstood and I apologize.I did not mean to say anything that could offend you or anyone in this group, believe me.
I have tried to avoid farmaceutical medicines so far because fortunatelly I could, but I also belive that nature could provide a lot for us and if and when I can find an alternative natural option, I am all for it!
The reason why I was speaking about Medithera is because with this system you could have a personalised program made on you by a specialist. I do not advertise it and I do not know anything about it. Maybe there are other brands that offer the same option, I don't know? What I know is that it is not cheap and, living on my pension, I am trying to gather as much information as I can before eventually decide to go for it. But I perfectly see your point and I can have easily been misunderstood and I will correct my post and delite the name from it.
As for the "seasonal food": again, it's my English to be blamed. What I meant is that I go to the market and I buy whatever vegetable and fruit I find there because they do not import any of them here, thereforethey display only what they can pick up from their fields. Nowadays you can buy fruit and vegetables all through out the year at supermarkets, even though it's not the right season for them.
I am very sorry to have started on the wrong foot and you might have had a bad impression of me but it was not my intention, please believe me and forgive me!
Nature has been very unkind to many of us before treatment. CLL was discovered in the 19th century by Virchow due to an autopsy. Even so, many do live a normal length life. The questions are, what quality is the life, and what determines that?
Nature has always created poisons as well as nutrition, and has always let innocent people and animals die painful deaths. Nature is indifferent.
Only a few people the failures and deaths after natural treatments or after alternative treatments like we do with pharmaceuticals.
I see your point, SeymourB! But I believe that we humans are more indifferent to nature than nature could be to us. Nature provides so many things for us, and yes, poisons and nutritions, but has also provided us all with a powerful mind and the abilities to study and discern. It is there for us and do not ask anything in return.I believe there are as much failures in natural and alternative treatments as in farmaceutical. Fortunatelly we can choose what route to follow, respecting of course the choices of the other! Thanks a lot for writing to me!😊
I think the opposite is true, that Nature is much more indifferent than we are. Nature is not a kind old lady. In most places on the planet, we survive despite Nature, not because of it, and this has led us to be hardened about many things. We do need to help Nature with many things. The Sun and Moon are Nature, too - extremely harsh. So we should not confuse their harshness with the need to protect the environment, animals, and plants. Otherwise we'll all end up living on the moon, and curse our ancestors. Human arrogance will be punished by Nature.
Prometheus stole the knowledge from the gods. The gods did not give it away. Science struggles for each insight. We should steal, and we should also thank that it was not harder to steal.
You are right, we can indeed choose. I enjoy hearing from you in the future.
Human arrogance will be punished by Nature, you say! Yes, and this mean that we humans are arrogant and we think that we can do what ever we like with it. Respect Nature and Nature will respect you. But nothing to do with climate change here, because I believe, and please note that this is only my personal and, if you like ignorant opinion, there is no climate change but only climate manipulation! I know that this statement of mine will provoke some kind of uncontrollable response😱😱😱😱😱😱😱😱😱😱, but this is my humble opinion. I respect the opinion of anyone else, please do not be to harsh on me now!! 🙃😵💫😵💫❤
Ciao e buonasera! I enjoy when people throw out new ideas and challenge old ones, and glad for your post, though I know nothing about this issue. I do have two issues I'd like to express, if okay: 1 ) perhaps there used to be only climate manipulation, but now it has definitely changed and I believe it is now so altered as to be beyond our control; and 2) your name--Nutella. I love the taste of nutella but won't buy it because it is produced by the most environmentally harmful corporation on the globe --Nestles. Nestles, to look at only one area of the world, is cutting down all the natural palms in Central America, polluting the rivers, to plant African palms for their widespread palm oil, which makes up a lot of nutella. Talk about climate manipulation! Nestles is and continues to be a leader in manipulation. All that aside, bravo for doing so well with your CLL, and hope you can find natural fixes -- and share with us.
I am with you 100% on Nutella issue, vlaminck!!! I have been boycotting Nestle for more ten 10 years now and, even though unfortunatelly I like the taste of nutella, I haven't bought and eaten it for the same ammount of time!! Ever since I discovered what Neste was doing to our planet (and maybe, even not only to it) i made a point not to buy anything coming from that evil corporation. I use the name nutella because it reminds me of my childhood and unfortunately now it is also linked to this horrible issue!! How many things and thruths I discovered expecially during these last 4 years? We have been lied to on so many topics, and I was not enquiring much. I trusted whatever was coming out of that stupid box called TV and what was written by the media. Now I always do my digging on whatever I am told or read, even though I never know which sources I can trust anymore!!As for the weather manipulation, I believe that our planet went already through many natural changings, it's enough to think of the various eras the humanity went through, like the ice age etc, but now our corrupt government all over the world find any excuses to put fear in people, because doing that they can control us! But again, this us my opinion, and of course I respect whatever different opinion could be brought on the table. I don't remember who said this sentense, but I always find it fitting perfectly with my way of thinking: " I hate what you are saying but I will give my life for the right for you to say it!" Thanks for writing to me, I wish you a fantastic healthy long life!😍🥰
Thanks for responding! I once looked at a chart of what Nestle's owned (at different levels) and it was shocking. For example, I have always fed my dogs Purina. No more. That is a Nestle product! Not that my single boycott will ever do anything to that gargantuan company! By the way, if I may ask, dove in Italia vivi? I have been there many times, mostly in the middle and southern parts and the Veneto.
Yes, for the same reason i never feed pirina to my dogs and cats!! You know, boycotting is the only weapon we have, even if we think that we are too few. Somebody once told me: :"count to a million" I asked "why?" he said, "dont worry, count to a million" , so i started, "1, 2 3" and he stopped me and said:" you see, you have always to start from one, even to get to a million!!" . Intresting, isn't it??
I am from Rome and lived there a big part of my life, now, recently, I moved to Crete, greece!! Fantastic place!
I see you can speak italian!! Grazie per avermi scritto, restiamo in contatto! Ciao😃😀😍
Una volta sapevo parlare italiano ma ora avrei bisogno di un corso di aggiornamento. Ma una delle mie città preferite al mondo è Roma! Yes, let's stay in contact, by messaging in the future since we are a bit off topic. Crete must be gorgeous.
Lo parli ancora molto bene, bravissima!! Keep in touch on private message!! We are definitely out of topic, but sometimes this is what we need!! 😉🤪 A big kiss 😍
Stagional is Italian for seasonal. Most of the text reads like it has gone through Google Translate (which is what I would do if attempting to write in a second language).
Thanks a lot for the suggestion neurodervish!!💚🙏🙏🙏 I was looking for the right terminology but at that moment it didn't come to me!! I was and am writing on this forum without the help of the translator, but I will try to be more attentive!! Thanks again 🙂 ☺️
I am very impressed Nutella! For me, writing in a foreign language is very difficult. Idiomatic expressions and contractions are especially difficult. Brava!
Thanks a lot neurodervish! But you will definitely find some other errors in my posts! And if you heard me speaking, my accent would make you laugh 🤪🤣🤣🤣
I would never laugh at a person brave enough to learn, speak and write in a foreign language. You probably learned more than one foreign language, since you live in Greece (which has an alphabet I could not read).
No worries Nutella. It might be me that misunderstood your post. It’s certainly not personal. I am by nature, I guess, suspicious of any first time post that ends up referencing some particular product that is for sale. Since this is a cll forum, I can only assume you are asking about treating cll with some specific product.
I see you have removed the name of the product from your post.
Quite frankly I couldn’t tell if you were inquiring about the magnetic treatment for your cll or if you were promoting it.
If it’s the former, I am sorry to have assumed the worst, and welcome you to the forum. While ignoring doctors advice might work for you, that can be ver dangerous for most of us.
It is a science based forum. I know little about magnet therapy. It sure would be great if there was science to support that. I do know that there is clear evidence that magnets have a place in healthcare, MRI scans use a magnetic field to align protons in our body to create images. I doubt magnets treat out cll though.
Your English is very good as a second language, certainly no apology needed there. I worry for you if your cll worsens and you still won’t treat.
Thanks for understanding, cajunjeff! My post was only inquiring if any of you had already had any experience on this.We are vibrating beings and working with vibration could and should do no harm to our body, but it could , maybe, help it?? I do not know and this is why I was asking!
Don't worry for me, I am now on watch and wait, and during this period I am trying some natural things .
Thanks for replying to me and for accepting me to this forum.
If vibration can for example stimulate cell growth, why would vibration not stimulate the growth of CLL cells?
Certain waves/frequencies like microwave, certainly can and do kill cancer cells, especially in localized tumors. But how do you vibrate all the CLL cells at a frequency that kills only them and not your good B-cells, and the rest of the good immune cells?
This is what I am trying to find out EnquiringKind (BTW, I love your username!😉) and this is also why I asked this question on thuis Forum. I am still searching for some answers and if and when I will know something more I will definitely published it 🙂
Are you going to be paying for this personalised programme? Or are they going to "give it to you for free"? If it is the latter than one would probably say there's probably no harm in trying...if the former than I would say you should be very careful that people don't make a good deal of money out of the fact you are sick. There are lots of people who make money out of other people's misery. It always baffles me when people who claim they found the cure for any cancer want you to pay for e.g. books and herbs, etc. Why can't they share their secret for free? Because it is a very good business...it just makes me angry when someone uses the vulnerability of others.
Actually I don't know, Saju21, and I would like to find out! For what I have been reading about this technology it cannot do any harm, but, according to what I understand now , after some comments here, maybe it could be harmful in my situation? Still don't know.
My assumption is that this is a money making business...I can't see anyone doing anything like this for a cancer patient for free...it's a way to make money out of vulnerable people...so it would be a no from me...
Yes, I agree Poodle2! It's so sad that we cannot trust humanity when it comes to evil money!! To tell you the truth, unfortunately we rarely can trust humanity even when it doesn't come to money!😉
I agree with you, poodle, when money is involved there is no compassion whatsoever. I don't know yet if they would charge you for the personalised treatment, I am still searching and trying to understand more about this topic, this is why I was asking here. I am gathering info from many sources but still I am not sure. The device itself costs money and of course I become suspicious!
But is an interesting brand new (n not very invasive) treatment for liver cancer. Awesome news for those with that brutal cancer. FDA approved it is and offered close to where I grew up… Detroit, Michigan.
What caught my eye is that trials are being run to see if it can treat stage 4 breast cancer well, my most very loved one is unfortunately in that leaky cancer boat. N read it’s trialing for other solid cancers too. Glorious … hope great results happen for helping those with certain solid cancers u like our blood cancer.
That article I posted n others about that treatment I’ve read, did not say it’s a good treatment for us CLLers. Darn.
Yes Pin7, I believe that Radio frequency and the PEMF are the same.I read that this technology is based on a project by Nicolas Tesla but I am not sure about it. Tesla invinted the MedBed, I see many articles about it, but I never managed to understand wether they are already using it somewhere. I am gathering info from many sources. Thanks a lot for sharing this article 🙏 t looks very intresting!
Sorry but MedBeds are a scam bbc.com/news/blogs-trending... and there doesn't appear to be a relationship between Nikola Tesla and the MedBed other than the use of his name.
Nikola Tesla was undoubtedly a genius, but a great deal of myth has been added to what he achieved in the past century. Take any mention of attributes to his breakthrough research with extra caution.
Another very intresting info, thanks a lot AussieNeil. I will search much deeper on the topic I didn't know! We need to be very carefully about what we read, I do not know who to believe anymore, but this is part of the recent awakening I am going through these last past years! 🙃
I am one of you with a different approach KIOTOLOVER. I believe that the more point of view we have the better? But maybe not for anyone. I am sorry if you found my post not adeguate but there was no intention to offend anybody here. Reading about different experiences it is always good, isn't it, even if you do not agree with other people choices.
I was honestly introducing myself to this group and, after that, I asked a question about PEMF.
I hope you will understand! Thanks for writing to me anyway, KIOTOLOVER. 🙂
I'm with you on this. Don't let anybody discourage you. Some just want to take their pills and be left alone. Others have more inquisitive minds. Right or wrong we all end up the same in the end. And how we proceed to that point is in our own hands. Make a decision and take responsibility for it.
I don’t have any information, just want to say what a lovely lifestyle and place to live! I used to be more natural and didn’t even take aspirin or vaccines, so I get it. (No more, since CLL.)
Yes NaturalWaze, Crete is a fantastic place to live. The energy of this island is amazing. I believe that appreciating nature, living in contact with it is always very healthy, but of course I understand that unfortunately sometimes you need to modify your opinion and choices. 😍
Please, let me welcome you to our community! This IS a terrific place to give voice to your thoughts. We have people here from all knowledge levels and no one should be afraid to ask ANY questions or voice an opinion. An opinion is just one's personal thought. I hope you do not feel judged by anyone. I wish you all the best with your CLL journey and hope you continue to fully enjoy your lovely surroundings and way of life. 🤗
Stamphappy!!🤩 thank you so very much for this lovely welcome. I though that I had expressed myself badly, but again, as you say, the more opinion and experience we get, the better!! Thanks again! 😊 🙏🙏🙏 I wish you too all the best on your personal journey, whatever approach you are choosing! 🙂
Agree with Stamphappy’s reply to you. This is a most welcoming forum that is a great place to ask questions and you’ll learn much about CLL from the many wise members here.
As I noted from my first reply you were inquiring about a new treatment that emits electro magnetic waves.
It’s a legitimate treatment (FDA approved treatment here in US via over 30 years of research and studies) for liver cancer and continued studies are targeting with trials against other cancers such as pancreatic cancer and breast cancer. Here’s a brief article about the treatment from the company that invented it:
I think a few replies you received were cautioning you that this treatment wasn’t for us CLLers our type of cancer being in our blood system versus solid tumor type cancers like liver cancer is.
Welcome to this forum Nutella! N… Keep asking any questions !
Love you all and I am so happy to have found and joined this forum. I have already gather so many info not only on PEMF but on my condition. Thanks for the article, I will read through it. And yes, from what I understand now from the comments here, it looks like it hasn't had any trial so far on CLL and the fact that this technology works better on solid tumor makes sence to me. I will keep enquiring and studying about it, and I will keep reading through this fantastic forum. Thanks again Pin57, most appreciated! 🥰😍😉
I know little about this particular technology, but I do have some experience with the effects of radio-frequency (RF) on living tissue. Many years ago I worked with a researcher who was studying the effect of prolonged exposure to high energy RF on living tissue. The test setup was using a high power ship radar to bombard rats over several weeks. This was a study funded by the US Navy and they were concerned about how their onboard radar systems might affect the sailors onboard. My role was to maintain the radar system.
As one might expect, this did not turn out well for the rats. After their "treatment", they developed large ulcerated sores and looked in pretty miserable shape. In essence, we were baking these rats in a microwave oven. It was really quite disgusting and I quit within a few months. While I don't like rats, I thought it was inhumane to cook them in this manner.
Based on this experience, I am always wary of exposure to strong electromagnetic fields.
Whao, Indolent!! What a terrible experience you had. I love animals, rats included, and I could never be able to see them suffering!! I have two dogs and eight cats! I don't think though that your experiment could be compared to this technology. So far and from what I read it has good effect on human bones and apparently cannot do harm. Still searching and looking to find out more. Thanks a lot for your post! 🙂
You say you have no symptoms but your doctor has told you that you need to start treatment? What reason did the doctor give for you needing treatment? Lymph doubling rate, low haemoglobin, low platelets?
When your doctor says it's time to treat the CLL, it is time to treat the CLL.
I can understand refusing a chemo treatment, leading CLL specialists in the US say "no more chemo", UK NHS England has as well (not sure if Wales has got the message). But I know some parts of Europe are clinging on to using chemo instead of novel targeted drugs.
Goodmorning Skyshark. They diagnosed me with CLL 5 years ago, more or less, and the doctor told me that we could have started some treatment but he also suggested me to get 3 vaccines straight away. He was insisting very much about it even though I was telling him that I felt very well, that my body was not giving me any message and I was against vaccines! So, to tell you the truth, I didn't ask why and what treatment he was speaking about. After my first shock for the unexpected news, I kept living my life the same way I was doing it following a sort of a "wait and watch" approach even though only now, on this forum I read and heard about it. All my life I tried to listen to my body and try to avoid doctors. Recently, after how the medicine staff has dealt with the Covid matter, I have even less trust in the category. But again, this is my way of thinking and I don't want and mean to judge any other approach , Skyshark, believe me . I am searching some natural treatment because fortunately I am still well and I can. I don't know what I would do if my body would send me other messages. In my life I changed my mind so many times on so many topics, and I am open to learn more! Thanks for your comment. 💙
Why, specifically, are you against vaccines? They are a very good, minimalistic, reasonably natural way of teaching our bodies how to recognise and fight off an illness without suffering from the actual infection. Non live vaccines just provide bits of a virus or bacteria coat, plus adjuvants, (immune system boosters), so that we can make antibodies/immunoglobulins and clued up T cells to hopefully neutralise invaders before they make us sick, or at least give us an advantage of being better prepared, so our bodies are faster at responding, so we are less likely to end up in hospital. Vaccination is not much different from entirely natural ways of getting infected by a scratch (needle), or getting sick from eating (oral tablet) or respiratory illness from breathing in something (nasal spray), but without the infection and the associated dangers.
My CLL began as the hidden Small Lymphocytic Lymphoma presentation - and it had pretty well destroyed my immune system by the time it was discovered. (I was diagnosed at stage 4 and had low antibody/immunoglobulin counts and stage 4 neutropenia. I couldn't make enough white blood cells and antibodies to keep me safe from infections.) Since my diagnosis, I would have died several times over without emergency admissions to hospital for life saving IV and oral antibiotics. Having hundreds of litres from bags of IV antibiotics pumped into me for many hours each day for in one case, over a month, is hardly natural. Surely avoiding that or at least reducing the risk of needing that by injecting or swallowing a few milligrams or millilitres of vaccine is more natural?
Goodmorning AussieNail. I understand that some vaccines could save lives, but when I was a child, the vaccines were specifically for one at a time very serious decease, which was a life tretenining one. And we got maybe 2 or 3 by the time we were 10/11 years old.
Nowadays we shot in our 1/2 years old children's arms 6/7 vaccines, all of them even polivalents, fighting against some diseases that our immune system could and should fight by itself.
I believe that when we get a "fightable" desease our immune system will recognise it and this is the best form of vaccine. Whereas, i believe that vaccines in general weaken our natural ability to fight.
We were 4 brothers and sisters, more or less the same age, and I remember that when one of us was sick, ( with a simple fever or something more serious) my mother would put us all together in the same bed and hoped that we all would catch it.
Then, this Covid matter happened, and I started reading and searching a lot about what the government wanted to shoot in my arm. I didn't and don't like at all what I discovered.
I believe that now the thruth is coming out and all the adverse reactions of these last forms of what they call vaccine is pretty scary.
I am not against all vaccines, but if and when I can avoid them, I will.
Your story is different though, and of course I don't know what I would have done in your shoes! The insisting pushing of the government and the big farmaceutical companies, supported by some corrupted doctors, makes me very suspicious. So much money has ben made on vaccines masks, syringes needles etc etc, and it doesn't make sense to me.
Anyway, as long as each of us can choose and decide what cure and approach follow, I respect anyone's choice. What i really don't want is when they will impose me a cure against my will!
I trust my body and so far, fortunately, i am feeling well, but again, I don't know (and I hope to never know) what I would do if my situation will change.
I see that you are the administrator of this Forum, AussieNail, and I want to thank you for what you have done and do for all of us 🙏🙏🙏.
I hope to have expressed myself correctly but i believe that in Italian i could have been much more clear and I apologize if some of what i wrote is not easily understantable. 🤪
I wish you a very long healthy and serene life, AussieNeil! Thank you.😍💜
It was my intention to help members have long and happy lives despite a CLL diagnosis by providing an evidence based community, when I began volunteering as an admin here over 10 years ago. So I hope what we have created here can likewise help you achieve the same.
It's actually considerably more dangerous to have infections than have vaccinations, more so if you are an adult than a child. I so wish I could have had a Chicken Pox vaccination rather than the illness when I was a child. That way I would have a way, way lower risk of living with constant postherpetic pain, which I've experienced now for 18 months. This is unfortunately a very real risk for our community and many members have had Shingles and sadly, quite a few members, like me, have long term, possibly permanent, painful nerve damage, causing postherpetic neuralgia or neuropathy. Thankfully, we now have the Shingrix vaccination to reduce that risk.
Also, there has been a vast amount of misinformation and disinformation (deliberately false) information about the supposed harms of COVID-19 vaccinations , much of which I've countered here healthunlocked.com/cllsuppo... There are many studies that have been done around the world which show that the risk of death from COVID-19 is higher in unvaccinated folk. That risk of death increases exponentially in older age groups, from 65+ onwards - and many of us fall in that age group category, given the median age of diagnosis for CLL is around 70.
Perhaps you're referring to TTF, also called tumor treating fields. TTF was designed by an Israeli scientist/physician and earmarked for glioblastoma, an extremely rare brain tumor. TTF was also approved (by the U.S. Food and Drug Administration) for recurrent GBM and mesothelioma, another rare cancer (outside lining of the lung.) I'm familiar with TTF because an older brother had the disease. The company that produces the product is called Optune. I hope this helps.
Hi Pat, I got this post from you about TTF but I didn't write anything about this topic .I wanted just to warn you that maybe you were meant to sent this reply to somebody else?
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Fever and low pulse and high heart rate
CLL Stage 0... Pulsing Rapamycin & Metformin & fasting 
Needing advice and support
I refused Chemo 2 months ago and I am trying the natural path 
Frightened of having treatment when the time comes!!!
