Zanubrutinib. Anyone have side effects? - CLL Support

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Zanubrutinib. Anyone have side effects?

Elliot43 profile image
7 Replies

I’m about to embark on the above Im maybe a months time. Does anyone have experience of taking this drug?

thank you

Sheila in Oz

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Elliot43 profile image
Elliot43
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7 Replies
Snakejaw profile image
Snakejaw

Yep I do, been on it for about four months. Had some pain in my ribs and soreness but it’s mostly gone away. Overall tolerated very well.

Elliot43 profile image
Elliot43 in reply to Snakejaw

Thank you Snakejaw sounds good to me. What dose are you on ?

Snakejaw profile image
Snakejaw in reply to Elliot43

320mg daily, also started taking 50mg of venetoclax in conjunction which will ramp up in coming weeks.

lankisterguy profile image
lankisterguyVolunteer

Hi Elliot43- Sheila,

-

You can often find useful info by checking the box on this page/posting labeled:

Related Posts

*Zanubrutinib 1st Side Effect

*more serious side effect of Zanubrutinib

*Zanubrutinib vs Acalabrutinib side effects

*Anyone have fever side effect with venetoclax?

*have covid and stopped Zanubrutinib

Upper right column on computer screens, scroll way below on mobile devices.

-

Len

Elliot43 profile image
Elliot43 in reply to lankisterguy

Thanks Lankisterguy. I became aware of them as I was writing my post.

wizzard166 profile image
wizzard166

Hey Elliot

I am such a newbie with Zanubrutinib, in that my first dose was January 1 of this year, but in the first five full days of the medication I have had no side effects. I'm sort of hoping this means I won't have any, but of course the more serious potential side effects probably take a good bit longer to develop. At least I haven't had the headaches, fatigue, nausea, constipation, or diarrhea.

I'm still having the same severe night sweats I was having before I started five days ago, and I'm not sure when if ever those will stop (assuming the treatment is working)

Carl

Elliot43 profile image
Elliot43 in reply to wizzard166

Carl, They do say not too many side effects so far and probably none! Or very little. I hope you continue doing well. Apart from the night sweats. I hope that they diminish in time.

Sheila in Oz

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