Does anyone know anything about this substance? A friend of mine is pushing it at me as a powerful anti-cancer drug with beneficial effects on the immune system. Obviously, I'm skeptical and certainly won't introduce this "mystery drug" into my routine without researching it and discussing with my doctor.
This stuff is available on Amazon for $69 for 90 pills. I notice that in addition to this phosphoethanolamine, the pills also contain some normal vitamins which I already take anyway.
Hi hhk50,
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This pinned post covers the overall subject of complimentary treatments:
healthunlocked.com/cllsuppo...
Please read thoroughly and use the links.
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To my knowledge, no one has ever found a compound or molecule that has a beneficial impact on all cancers and the immune system. If they did, they certainly wouldn't sell it on Amazon for $69 for 90 pills. They could sell it for hundreds or thousands of dollars per pill make billions of $ revenue.
The major research organizations & pharmaceutical companies that do clinical trials would not be hiding these miracle treatments, they would be exploiting them for profit.
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Len
No surprise. I wasn't planning on introducing this to my medicine chest without careful analysis. Like the old saying goes...."If it seems too good to be true, it is too good to be true."
Just to be a bit devil's advocate -- and altho I doubt any cancer cure-all would sell at $69 for 90 pills as Len says, sadly there have been cases of big pharma "hiding" results of things because they are openly available and not subject to patent. I know nothing about this drug, but also, as Len indicates, there are probably things good for solid tumors that don't help blood cancers and vice versa. Have you searched this drug with "ncbi" attached to search (which will show you if any national health articles)?
In my opinion only, the number of over the counter drugs or supplements you can buy on amazon for $69 that effectively “treat” cancer are exactly zero.
I do think that there are probably many foods, and therefore many supplements, that have natural anti-cancer properties. Foods like apples, grapes, broccoli, kale and strawberries, for instance, are all thought to reduce cancer risk.
The fact these foods may have anti-cancer properties, however, is a far cry from having the ability to effectively treat and fight cancer. I have had a handful of well intentioned friends push miracle natural cancer remedies on me. When it comes to amazon miracle drugs, caveat emptor, let the buyer beware.
hhk50, As Dr Ezard Ernst noted in the reference provided by Jammin_Me; edzardernst.com/2018/11/the...
This story seems like a re-play of many similar tales of bogus cancer cures of the past. They all seem to follow a similar pattern:
- Someone dreams up a ‘cure’ for all cancers that is cheap and free of side-effects.
- This appeals to many desperate cancer patients who are fighting for their lives.
- It also attracts several entrepreneurs who are hoping to make a fast buck.
- The story is picked up by the press and consequently a sizable grass-roots movement of support emerges.
- Populist politicians jump on the vote-winning band-waggon.
- The experts caution that the bogus cancer ‘cure’ is devoid of evidence and might put patients’ lives at risk.
- The legislators get involved.
- Law suits start left, right and centre.
- Eventually, the cancer ‘cure’ is scientifically tested and confirmed to be bogus.
- Eventually, the law rules against the bogus ‘cure’.
- A conspiracy theory emerges stating that the cancer ‘cure’ was unjustly suppressed to protect the interests of Big Pharma.
- A few years later, the subject re-surfaces and the whole cycle starts from the beginning.
The comment from Luciana is also part of the usual grifting process;
"Sadly many, many cancer patients and their families are spending BIG BUCKS to buy this substance from abroad (apparently, its fabrication in Brazil has been outlawed). Clever enterpreneurs work as intermediates, selling them this substance. There are several commercial brends now, and they fight amongst themselves, each claiming to be the “real fosfo”. One of them was tested and doesn’t even have Fosfo (phosphoethanolamine) in its capsules!! You’d expect that, out of common decency, one who sells bogus drugs at least believes in their own product, and actually sells it. Well, nope."
I've added Phosphoethanolamine to the ever growing list of supplements with poorly supported claims to cure cancer/CLL in my reply to the post referenced by lankisterguy
Neil
Sad isn’t it, how these people take advantage of those of us who are fighting this dreadful disease
Thanks very much for your research. I found a couple of skeptical articles myself but the ones you found are clearly taking a strong position on this "cure-all". It seems that the product is skirting the claim of being a cancer-cure and is instead being marketed as an "Immune-booster"
Claiming something is an immune booster, generally immediately rules it out for CLL in my opinion. That's because from my research into claimed immune boosters, whenever I've been able to track down the evidence for the claim, it is nearly always based on the observation of increased lymphocyte production and activity. That's exactly what you don't want when you have a lymphocytic leukaemia/lymphoma!
I've been particularly interested in any supplements for which there are immune boosting claims, because my CLL/SLL's most problematic symptom was chronic neutropenia, leaving me very immune compromised. My diagnosing CLL specialist warned me that there was nothing that I could take to boost my neutrophils and 14 years on, I still find my specialist's advice to be correct.
Neil
Thanks again, Neil. When I was in W&W, it was my platelet count that kicked me over the edge into treatment. With Ibrutinib the platelet count is fine. However, during the days that I was trying to forestall treatment, I gulped down Papaya Leaf Extract based on claims that it would boost platelet levels. Didn't do a damn thing.
The owner of my local health food store told me he knew someone that cured their leukemia with CBD Oil and suggested I purchase bottles from him instead of treatment. I haven’t been back to the store. 😵💫
That was a very wise move, not getting taken in by that claim, because there is good evidence that CBD Oil may actually accelerate CLL, by encouraging the move of CLL cells from the peripheral blood into the nodes, where they propagate!
healthunlocked.com/cllsuppo...
Just read about Cannabis and the redistribution of the cells. Thank you for the info.
pubmed.ncbi.nlm.nih.gov/315...
Only 24 citations after 4 years, mainly with respect to breast cancer. None from CLL cancer researchers.
Many friendly suggestions for cancer treatment are a mystery for us. They all come with side effects, and possible reactions to prescribed medications from a doctor.
hhk50 -
It never ceases to amaze me that there are no conspiracy theories about nutraceuticals, when the whole neutraceutical marketplace is now billions of dollars, and almost completely unregulated in most countries.
Evidence requires counting everyone taking it and how many failed or died. Testimonials do neither of those. It's a perfect marketing method for con artists.
=seymour=
HAS ANYONE ON THE PAGE HAD EXPERIENCE WITH ANTI DEPRESSANTS?
Bruising
Are there possibilities other than stem cell transplant in Canada for CLL with 11Q deletion?
A new kid on the block? Nemtabrutinib
