CLL and Bells Palsy.

[Vindicatrix]

Hi all, I am presently being transferred to my new local Hematology team, and last Monday I was diagnosed with Bells Palsy. does anyone have any info on any complications in having CLL and then Bells Palsy.

I am on 'Prednisolon', which has a side effect of weaker immunity, and vulnerability to infections.

I have notified my new Hematology Team of this, and they have suddenly brough my appointment forward considerably, to the 24th July'

Also, can anyone assist me in accessing a list of the names and qualifications of our local NHS Hospital, Hematology Consultants. I have tried all variations of searches but to no avail.

Any views, or experiences would be very much appreciated

Thanks Ron.

[lankisterguy Volunteer]

Hi Vindicatrix

Here is a list of the 3 previous postings that mention Bells Palsy:

healthunlocked.com/cllsuppo...

Len

[RZ8983DV]

Doesn't the website of your local HS trust give the names of the consultants by dept.? When I was first diagnosed 15 years ago I looked them up in the medical directory in a public library

[DRM18]

Hi V,

Hmm. I contracted Bell's Palsy about seven weeks ago, presumably because I'd been exposed to the flu, which my son had, and which can trigger the condition.

I was on low-dose prednisone for ten days, and valocyclovir (Valtrex) 1000mg for a couple weeks.

Thankfully, after a week, I started to get some movement back, and after 2-3 weeks, the condition had essentially disappeared.

Hope yours improves as quickly!

--Dave!

[Vindicatrix in reply to DRM18]

Thanks so much for the info, it was off much interest to me, and reassure me somewhat.

Can I ask if you have CLL and are on treatment yet, as I go for same, next week, after 5 years W&W

I am currently attempting to ascertain if there is a connexction between CLL and Bells Palsy'.

Thanks again much appreciated

Regards Ron

[DRM18 in reply to Vindicatrix]

Hi Ron,

Yeah, I have CLL, currently on Zanabrutunib, which wasn’t paused during the palsy. (Been on it since February, to good effect.) I’d been taking Valtrex all along, as a precaution, and I wonder if that’s what led me to have such a mild case of Bell’s: as I was already on a treatment for it before I got it! … As for prednisone, I think I was on 10mg twice day.

Feel free to message me if you have other questions!

—Dave

[Vindicatrix in reply to DRM18]

Thanks DRM18, that helped a lot, and I am somewhat reassured, I hope things continue to work out well for you.

All the best

Ron

[Dragonspen]

I had contracted Shingles one week before being hit with Bells Palsy. I am on Ibrutinib for CLL and have been on Valtrex since. I continued with treatment through the Shingles and the Palsy. That was four years ago and things have been fine after that. It took about 6 weeks for the Palsy to vanish and a little longer for the Shingles. I hope things clear up quickly for you. 🙂