Not rash issues but who knows ?

[JerrysGirl3]

so I saw cll doc today. My wbc has doubled. Some numbers going off grid. He's starting me back on meds starting tonight at half dose as I had problems with full dose.

And so my journey begins again.... it will be interesting to see what happens with my rash and breathing issues. Will keep everyone apprised. 🥺😳

[Jmiah717]

best and healing to you!

[Poodle2]

Hope it will be easier than your previous experience. Sending positive vibes ✨️ 🙏🏻 💖 Petra

[JerrysGirl3 in reply to Poodle2]

it was a tie with last experience. 🥺🥺. It was just so awful. I took 2 allergy pills and 2 steroids and it still didn't take it away hrs later ! This morning I am fine. I think I am having RBC and oxygen issues as well as iron issues. Doc always says no. He wanted me to start meds again at half dose starting last night! Would you have started a strong Med with a severe hives attack??? It could be cll related. I need a biopsy but sometimes they don't stick around for long. Sometimes I don't get them. How do you schedule a biopsy for something like that ! Lupus doc won't even talk to me any more until I find out what is causing the rash !! Well, thank you for helping me figure it out !!! I mean, really. No one knows what to do. I took some B12 and iron supplements today. Before I did, I thought I was going to faint ! Never got that before. I feel better now but my God...I was all alone and husband never responded to my text 😡

[Poodle2 in reply to JerrysGirl3]

I'm so sorry 🙏🏻❤️

[JerrysGirl3 in reply to Poodle2]

thank you ❤️

[Hazel33]

🙏 good luck

[kitchengardener2]

Oh JerrysGirl3 so sorry to read this. God's blessings winging their way across the Atlantic to you. Stay strong xx

[JerrysGirl3 in reply to kitchengardener2]

thank you. I am barely coping with no support

[kitchengardener2 in reply to JerrysGirl3]

Have PM'd you.

[Jungle-Jim]

Could your "rash' possibly be "leukemia cutis?" I've experienced a similar problem for over 1 year, seeking help from a dermatologist (with little success). My chest, stomach and lower back are covered. Clobetasol eliminated the irritation and discomfort, but the bumps largely remain. I will consult my oncologist in 3 weeks.

[JerrysGirl3 in reply to Jungle-Jim]

anything is possible. I had calcinotis cutis (not sure if spelling ) on my leg. Hard lump. Went to doc in city yesterday by the time I got home I was covered in hives so bad I thought I would have to go to the hospital. Woke up today, fine. 🤷🏻‍♀️ I have no clue.