Is anyone on Zanubrutinib?: Is anyone on... - CLL Support

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Is anyone on Zanubrutinib?

helenolton profile image
6 Replies

Is anyone on Zanubrutinib?

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helenolton profile image
helenolton
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6 Replies
lankisterguy profile image
lankisterguyVolunteer

Hi helennolton,

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You can find several past discussions by looking for the box on this page labeled:

Related Posts

*Has anyone started Zanubrutinib as first line treatment for their CLL?

*Zanubrutinib + Venetoclax?

*Zanubrutinib or ventoclax?

*Starting Zanubrutinib

*Zanubrutinib trial update

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And here is the list of 200 past postings that mention Zanubrutinib:

healthunlocked.com/cllsuppo...

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Len

Ellieoak profile image
Ellieoak

Hi Helenolton, I have been on Zanubrutinib for 4 months now. All my lymph nodes went down but my WBC didn't respond at all till the last 2 weeks. but all is good now.

helenolton profile image
helenolton in reply toEllieoak

Thank you.

marlapoi profile image
marlapoi in reply tohelenolton

Same here, 4 months for my husband, nodes completely gone, WBC slowly go down.

ecohen66 profile image
ecohen66

Hi! Have not but I’m taking Acalabutrinib twice a day and my numbers are in range . It’s been two months.

CoachVera55 profile image
CoachVera55

Hello everyone, I just started Zanubrutinib on Monday, so this is day 3. I felt tired the first 24hrs & now I feel my energy coming back. I am noticing some tenderness in my mouth too. Otherwise everything is good so far🙏🏾 It was a difficult decision for me but the numbers corresponded to my feeling weaker & more fragile.

I made the cut as my numbers dropped & WBC doubled in 6 mos.

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