My CAR-T Journey - 11

[Oleboyredw-uk]

Happy new year to you all. I had not planned another post for a while, however, I decided I should just share a couple of things.

1: Went for tests on 16th Dec. A nurse thought she could see a very faint second line on the LFT I did. Second LFT done and nobody could see a line but as a precaution they did a PCR. On 23rd Dec got a call from NHS 111 (or is it 119), two emails and a text. COVID positive. Not a great start to Christmas. Anyway the NHS 11x people wouldnt give me the antivirals until I got worse. I was largely asymptomatic. Home LFT on 23rd was positive, LFTs on 24th, 26th and 30th all negative and I feel fine.

2: Here is an article about CAR-T and me, it is in today's Mail on Sunday. I feel a bit awkward posting it , I hope people dont mind. There is as far as I can see only one real error, I was first with CLL in The Christie, I'm not sure I was first in UK.

dailymail.co.uk/health/arti...

Best wishes to all

[terryI_uk]

Happy New Year Rob, thanks for posting the article. No need to feel awkward, it's very positive and could be the future for lots of us, God bless, Terry

[prbs2707]

Hi Rob, Just read the article. Brilliant and you look great. I love the picture of you with the grandkids on what looks like glorious Derbyshire Peak District country?

Wishing you the very best of luck health and happiness in 2023. Patrick

[Oleboyredw-uk in reply to prbs2707]

It was a glorious August day about three months after my CAR-T infusion and biking was the order of the day.

[Rebrin-UK]

Seasons greetings to you too. Nice (no pun intended) one Rob, thanks for sharing, great pic with grandbairns too.

[Marisa]

Thank you. I had already read your inspiring story in the Mail. Have a very happy and healthier New Year🍾🎈🍾🎉

[HopeME]

Hi Rob: Please don’t feel awkward. You give us hope so we LOVE to see information from you. Hopefully, you are the future for hard to treat patients. I’m sure your journey hasn’t been easy. I really appreciate the way you are so positive in your posts. I’m sorry about the Covid but with your spirt and grit you’ll handle it just fine. Happy New Year to you and your family!

Best,

Mark

[Newdawn Administrator]

By exposing your own personal experience you raise the issue, spread the word and give us hope for future treatments. Many thanks Rob and long may your remission hold strong because you have a lot of life left to give with your lovely grandchildren.

Newdawn

[Tangolover]

Congratulations to you! A wonderful way to start the new year!!

[Catnap7]

Happy New Year! Thanks for sharing your wonderful news HOPE is spreading thanks to YOU, so perfect as we move into 2023 Best to you God bless

Catnap7 🐈🐈

[Ghounds]

Good to hear from you and looking forward to reading the article. Very best wishes for a healthy 2023 and beyond.

[Fran57]

Thanks for sharing! Fame at last, eh?

Take care and stay safe. Happy new year and many more,

Fran 😊

[Mtk1]

just read your story in paper, glad things are going well, gives us all hope.

Thanks Dave.

[Peggy4]

A great article, bringing much hope for those reading. You look well and happy with those lovely grandchildren. I think they keep us feeling young (well most of the time!🤣

Peggy

[Mystic75]

Thank you so much for sharing! Sorry you developed COVID but grateful you did not experience the side effects many do. The article was a delight to read and so encouraging. You've got a couple of very cute grandkids, too!

Congratulations Rob!

[Ernest2]

Happy New Year Robin.

Huge Well Done, and thank you for sharing the good news.

Best wishes,

Ernest

[scarletnoir]

Good news indeed - I'm in a long remission, but who knows? This could be very useful in future! Thanks.