I would like to know other peoples experience with CLL. My lymphocytes went up to 270 and I was started on Acalabrutinib 100mg twice daily. Have been on this for 100 days, This has brought the count down to 8.5 . I have had atrial fibrillation a year before starting on Acal, so I am on beta blocker and blood thinner. So far no effects from taking this medication. I believe you continue taking it until your body reacts against it.
In early days had spleen out 2004 . When lymphocytes progressed had Retuxan and Chlorambucil 4 rounds in 2017. Count started going back up in 2021.
I would be very pleased to get more knowledge of my “new” disease. Thankyou Jennifer_africa
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Jennifer_africa
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The testing that is done to distinguish among the 70+ different Leukemias and Lymphomas is sometimes confusing, and the doctors need to test repeatedly. The test is called Flow cytometry . Here are some explanations of the process.
I believe that many CLL expert doctors would tell you that more is known about treating CLL than MCL - although some treatments are used for both.
And also you have good news that yours does respond to treatment.
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There are many resources for you to read, to help understand your CLL diagnosis see (this first link leads to many others, so take you time to read a few and come back to it often over the next few weeks or months).
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Calquence First Week
SLL and Acalabrutinib 
Zanabrutinib
Starting Acalabrutinib from today.
