Checking in: hi all received letter ( patient... - CLL Support

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Sepsur profile image
12 Replies

hi all

received letter ( patient copy) still in remission MRD - although, during our consultations, I have noticed phrases like “well hopefully this will last a couple years before we need some sort of treatment again”

Just got to enjoy the respite at present😊

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Sepsur profile image
Sepsur
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12 Replies
scryer99 profile image
scryer99

Congratulations! Looking at your rather daunting profile, I’m sure that some good news is a real blessing.

Congrats! Glad to hear from you!

Sepsur profile image
Sepsur in reply to

how are you doing?

in reply toSepsur

Not all better, but better.

I might oughtta post an update soon.

Big_Dee profile image
Big_Dee

Hello Sepsur

Way to go! Finally, a little relief. Blessings.

Name-1 profile image
Name-1

😍🍀👍

Psmithuk profile image
Psmithuk

It’s good to hear any good news when reading your posts Sepsur! Fingers crossed all will be well for many years yet. Chrisx

Mandy56 profile image
Mandy56

hi, I’ve seen from your profile that you were treated at The Christie - me too! Also on The Flair trial but with FCR treatment. Like you, I am in remission, now 4 years on, but last time I went, Caz said that I don’t need treatment yet and I’m thinking - well why would I need treatment? I’m in remission. I wonder if the trial doctors look at things differently and they are thinking of the next stage. Hopefully that is quite a way off for us both.

Well done in all you have overcome and I wish you a lovely long remission.

Sepsur profile image
Sepsur in reply toMandy56

Kaz is lovely.

I get confused by their mixed messages though!!

Jacksc06 profile image
Jacksc06

Great news.

Palmetto profile image
Palmetto

MRD or UMRD? That would be the difference when predicting further need being more imminent maybe that is what they meant?

Sepsur profile image
Sepsur in reply toPalmetto

yes although I don’t know that we are given the same definition in U.K. ( I might be wrong)

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