bone marrow infiltration %

[tms99532]

How many percent bone marrow infiltration at start treatment.

[AussieNeil Partner Administrator]

Some members have reported CLL bone marrow infiltration into the 90+ percent range at the start of treatment. We don't usually know about our infiltration level unless it's checked as part of a clinical trial. A proxy for assessing bone marrow involvement is falling haemoglobin, platelet or neutrophil counts.

Neil

[tms99532 in reply to AussieNeil]

Many thanks

[SandandWind]

Mine was 98%

[tms99532 in reply to SandandWind]

noted with thanks

[DRM18]

I was over 90%

--Dave!

[tms99532 in reply to DRM18]

noted with thanks

[edelweiss]

Mine was 91%

[tms99532 in reply to edelweiss]

noted with thanks

[stevesmith1964]

Mine was at 100% at diagnosis.... went straight to a transfusion and Obinatuzamab/Ibrutinib

[tms99532 in reply to stevesmith1964]

noted with thanks

[morepork]

Mine was also 90% infiltration 1997's BMB but had no treatment until 2016 .

[tms99532 in reply to morepork]

you mean 90% infiltration 1997,how about 2016

[morepork in reply to tms99532]

Haven't had another BMB since then , hematologist happy to see my stable CLL thanks to Ibrutinib , sees no reason to repeat. 😊

[very]

My husband's was 99 .Jenny uk

[tms99532 in reply to very]

noted with thanks

[tms99532 in reply to very]

thank you

[bennevisplace]

For me 90 % pre-treatment, 13.5 years after diagnosis (13q del, IGHV mutated).

[tms99532 in reply to bennevisplace]

many thanks

[Graham2222]

I had 95per cent infiltration. The technical term my consultant used was that my bone marrow was ‘stuffed full’ with CLL cells!

[BeckyLUSA]

90%+ pre treatment. Have not been told of any measures since then.

[Cindi73]

My BMB showed 95% infiltration.

[Ncapper]

I was on watch and wait for 4 years. The last 6 months were bad, horrible fatigue, extremely achy, night sweats, vertigo, and bone pain which was specifically in my upper spine area. I had a bone marrow biopsy before starting treatment and it showed CLL infiltration around 95% in my marrow. I started on Imbruvica and within 2 weeks, I felt different. You don’t realize how sick you are until you start feeling better. Don’t be afraid to start treatment; Imbruvica gave me my life back…