I’m just seeking a bit of guidance for the future months: I’ve recently completed 4 months of oral chemo and am nearly at the end 6 x 4 weekly treatments of Rituximab. Having read that it remains in the system for 6-12 months and that alcohol should be avoided during treatments, does this imply that it should also be avoided for the 6-12 month period afterwards? Can’t seem to find any website information that covers this and the hospital is equally vague……does anyone have any clear guidance from practitioners or sites, from their own experience? The occasional glass of wine is something that I have missed but don’t want to compromise treatment by imbibing too soon!
Many thanks.🌈
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AudeRambler
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A much more important factor to keep in mind is your chance of developing what's termed Late Onset Neutropenia, which can occur in this 12 month post treatment period, though it's more likely to happen in the first 6 months. Per this post, the chances are higher if you needed G-CSF injections to boost your neutrophils prior to a treatment cycle.
I am not sure what oral drug you are on and how that factors into the equation, but I would not think having completed a rituximab regimen would require you avoid alcohol in moderation. My doctor okayed moderate alcohol for me, even during treatment.
We are all different with our cll, and that's why this type question ultimately is one for our doctors to answer.
The literature is contradictory, with some sites saying no alcohol at all while on rituxan and others saying its ok in moderation.
I never heard about those but I found that Endoxan is the C in FCR. Is the active substance of Perdura called Fludarabin? Google is stupid and whenever I google Perdura it comes up with translations of the Spanish word "perdurar".🙂
Hi LeoPa. Thanks so much for your time: the drugs are the French names, which is where I’m being treated: indeed, fludura is fluradabine and endoxan is a cyclophosamide. Not sure if this helps! 🌈
Thank you,yes,all clear. I guess playing it safe would mean that you give up the wine, but if life's not worth living without it, you can folow the doctor's advice 😀 and enjoy a little.
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