Pain in legs and arms: Hello, I was diagnosed... - CLL Support

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Pain in legs and arms

Arnon profile image
6 Replies

Hello, I was diagnosed last year with cll and currently on w&w. My wbc has gone from 10 to 17k and lymphocytes from 7 to11k in one year. I recently have become ill and thought it might be covid but test came back negative. Dr is running bloodwork again. He thinks maybe an infection so he started me on augmentin. My symptoms are headache fatigue, swollen lymph nodes, nausea and fever. Just the past two days i have developed debilitating pain in my legs and arms. I did some wood stacking a few days back and at first i thought it was from that. But now the pain is more than i have ever experienced after laborious activity. Has anyone experienced similar problems and were they related to cll. Thanks

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Arnon
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annabelle63 profile image
annabelle63

I am feeling like that from Y second vaccine. Feel better

Arnon profile image
Arnon in reply to annabelle63

Thank you, my second shot gave me some pretty good swelling in the armpit lymphnodes on the same side i received the shot. Lasted about two weeks. I had them tested and my antibodies are good.

AussieNeil profile image
AussieNeilAdministrator

Hi Arnon,

Your lymphocyte doubling time looks to be a modest around every two years, but CLL specialists don't pay that much attention to doubling time until your lymphocyte count climbs over 30. While there are a few Related Posts recommended by your post below (or to the right) of your post, the leg and arm pain symptoms, along with your other symptoms, fit more with an infection than with CLL. I hope that you soon feel better.

Neil

Arnon profile image
Arnon in reply to AussieNeil

Thank you. That goes in line with what my Dr is saying. Hoping to get blood results today.

Dewyisdry profile image
Dewyisdry

Yes. I have pain in my calves.I must take pain killers or unbearable. Not a cramp but painful tight muscles I cannot massage away. Nausea a little. Headache. Mouth muscles hurt when I eat. Fever or chills....goes back n forth. Cough with some clear phlegm. And of course...fatigue. CLL diagnosed June 2021

Arnon profile image
Arnon

Well I got my bloodwork back yesterday. Wbc up to 36000 and it turns out i have cmv and reactivated ebv. I also had surgery on my colon last year so i went to my gastro dr today and he sent me for a cat scan. He ran bloodwork and results showed wbc down to 24000 so it looks like the antibiotic is working. Cat scan showed normal so i still don’t know where the infection is. The more i read about these viruses the more i think they may be responsible for a lot of problems with cll. Does anyone have any experience to share about virus reactivation?

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