Anyone else having to pain in forearm and upper arm? Best way to explain is that it feels like I've been hanging from just my arm. I have it only in my right arm. I'm left-handed, tho probably not relevant. On Ibrutinib for nearly 6 months.
Ibrutinib and arm pain: Anyone else having to... - CLL Support
Is it muscle pain or bone & joint pain? I'm on ibrutinib (6 months now) and I've had roving joint pain from ibrutinib. I get it in my elbows, wrists, fingers, knees, ankles and feet and more recently in my hips and shoulders. I'm told that means it's working so I kinda welcome it and take a lot of Tylenol. It was explained to me that it means my bones are releasing all the bad CLL cells. But if you're having muscle pain, that's something else I can't comment.
Depends which hot tub you go into. I was in Punta Cana! Never again! after that I caught sinusitis , bronchitis took 3 diff types of antibiotics that resulted in a pulsating tinnitus. Not the same as tinnitus. Took 3 months to feel normal. Ear is still messed up. Saw an ENT who thinks I may be going deaf. Tuesday is my 3 month check up with my HEMATOLOGIST. hopefully he can save my ear. I read somewhere lack of Vit B 12 or anemia can cause pulsating tinnitus
I’m a lefty too. I’ve been on Ibrutinib for 2 months now and have had the same roaming joint pain described by many here. It does occasionally feel more like a soreness than just a joint ache.
The very first time was about 2 weeks after I started the drug and was the worst bout by far. But it only lasted about 5 days.
Since then I’ll get an occasional ache - always in a different random joint - but it goes away pretty quickly.
Nearing 2 1/2 years on Imbruvica and I am still always amazed at the differing side effects we all experience...extreme fatigue, diarrhea, pain, nausea..... I'm apparently very lucky.... my numbers are excellent and the most troubling side effect has been brittle nails and splitting skin on my finger tips.
With that said...everyone's comments are helpful and important just to know what we might see happen