Don't Worry

[Tupelomojo]

Are there any drugs to take that help to postpone the toxic CLL treatments. I heard of one shot that you can take twice a month that will work for a year. Now I lost the shortcut on my computer to go back to that page.

I am so far so good with my blood tests WBC @ 48, although the covid shot made my lymph nodes in my groin swell up and now they don't want to go back to normal. I don't have swelling anywhere else. Hospital wants me to get booster no. 3. Hmm, what will happen then.? Ho ho

Anyway, as long as my tests stay OK perhaps I will stay on idle and not worry to much. (Yeah, just like that

[AussieNeil Administrator]

Welcome to our community; I see that this is your first post.

From reading your post and profile (thanks for completing that!), I would say that you are overly concerned regarding the toxicity of modern CLL treatments. In the USA, you have by far the best access to selective targeted therapies, both FDA approved and through an enviable number of clinical trials, later generation even more selectively targeted therapies with hopefully even less off target effects that can potentially cause side and adverse effects. Anything we take to hopefully improve our health, comes with the potential to cause unwanted effects that could worsen our health. That's in part why watch and wait is still the standard approach for CLL management. I've been monitoring CLL treatments, both approved and alternative, for over 12 years and a "one shot (drug) that you can take twice a month that will work for a year" doesn't bring anything to mind, sorry.

Neil

[Sushibruno in reply to AussieNeil]

Never heard of this, what shot is he referring to?

[AussieNeil Administrator in reply to Sushibruno]

Makes two of us. Tupelomojo, do you remember if the drug was specifically for CLL?

[Tupelomojo in reply to AussieNeil]

Most definitely.

[Tupelomojo in reply to Sushibruno]

Sorry, perhaps I gave the impression that it was therapy towards remission.

[bennevisplace in reply to Sushibruno]

Tequila?

[Sushibruno in reply to bennevisplace]

🤣🤣🤣🤣🤣

[Tupelomojo in reply to Sushibruno]

😀

[Tupelomojo in reply to bennevisplace]

Ar you on the Tequila targeted therapy?

[bennevisplace in reply to Tupelomojo]

See below, I meant to reply to you.

[Tupelomojo in reply to AussieNeil]

Thanks - This shot was not suggested as treatment towards remission. Only as a delaying tactic towards avoiding targeted therapies too soon. I'll find the article sooner or later.

[bennevisplace]

reservebar.com/products/pat... Before purchasing, please contact your health insurer.

[Newdawn Administrator in reply to bennevisplace]

I’ll put it on my Christmas wish list! 😉 Don’t try this at home folks! Tequila only takes your mind off the CLL and has dubious therapeutic effects 😄

Newdawn

[bennevisplace in reply to Newdawn]

In my home getting the third shot is no problem. Getting up in the morning can be.

[Tupelomojo in reply to bennevisplace]

Perhaps a "Ramping up" regimen of 1.0 OZ to 100 ounces per day -also since you have trouble getting up; I think you are missing doses! Thanks for your past advice. I felt better straight away 👍

[Tupelomojo in reply to bennevisplace]

😭

[Tupelomojo in reply to Newdawn]

Hmm, I don't know what to think now. I thought bennevisplace meant that the Tequila was top of the line therapy . . . I'll bet that the worm along with the lemon/lime must also be administered - yes, that's the ticket!

[Jacksc06]

Hi. I am currently having a swelling in my groin investigated that has appeared since i had my second shot.

[Tupelomojo in reply to Jacksc06]

Same thing happened to me

👎