Does CLL cause red "pink eyes"? I am on the wait and see for about 3 years now and was wondering if this is one of the symptoms of CLL. I also have had red patches on my legs. My Doctor is wondering if my CLL Specialist should be more active and considering treatment now. My last WBC count was 65, and it only increased from 61 to 65 in the last 6 months.
Thanks in advance.
larrcow,
Pink eyes are not something I have seen as related to CLL.
If you can make appointment with an eye Dr. Opthamalogist to have your eyes examined, you would be doing the best thing for that situation.
As for the red patches, there are many possibilities and while red patches "could" be CLL related, your best move for those is make an appointment with a Dermatologist to have an assessment of what is going on with the red patches. There may be something else going on and the Dermatologist should do some testing of the spots if it is not readily known what the source of them is.
It is good to ask your CLL Dr. about these things, but the best and most knowledge is with the specialists for the situation because those Drs. have the tools and experience with the area of the body they see lots of patients about.
It seems like, as we age, we are always on the run to see this or that Dr. However, I have found that once I have consulted with an appropriate Dr. for the situation, I can relax and stop the worrying, as most of my Drs. have taken care of the area they have the expertise in.
Best wishes for getting the care you need.
OK thanks for the feedback cllady01. Many things run through my mind because of the CLL. I forgot to mention my hayfever does act up this time of year so I may be having some reaction to that. I am now taking some hayfever medicine to help with any allergic reactions that may be occurring.My family practice Doctor did say she would consult with my CLL Doc to see what his opinion would be. And I did request my family practice doctor for a referral to a Dermatologist.
Thanks for the info.
larrcow
PCP/GP (family practice) doctors aren't all that familiar with CLL. Some Australian Leukaemia Foundation research in the last 10 years found that this doctor group typically saw about half a dozen lymphoma cases in their entire career. Even though CLL is the most commonly diagnosed adult lymphoma, it's still a relatively rare cancer. So it's great that your family practice doctor is consulting with your CLL doctor.
I should also mention that because CLL is a relatively rare cancer, general oncologists are unlikely to be able to keep up with the latest treatment developments. I've even seen cases of people with CLL being treated before necessary (the specialist may use the same treatment triggers for all of the different chronic lymphoma cases. It's also sadly common for inadequate pre-treatment testing and therefore inappropriate treatments been given. That's why we have this Pinned Post explaining what triggers the need for CLL treatment: healthunlocked.com/cllsuppo...
Neil
Thank you for the information AussieNeil. It's like once people and doctors find out you have CLL, they shut down and think your ailment is probably due to CLL.
larrcow
Please see your opthamologist or an eye specialist. I had red eye and it turned out that the CLL had migrated to my eyes. Though rare, it is a clear sign for treatment.
My eyes were always red and looked like I had been crying. My eye doctor told me I have Blepharitis which can be caused by allergies or clogged oil glands at the base of each eyelash. I use an eye wash twice a day and it has helped tremendously. You might check that out. Not CLL related.
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