Sorry for the long post but I am running out of ideas. I am on W and W. I was diagnosed 9 years ago with CLL at the age of 37. Over the last year I have been getting problems with my eyes. One or both eyelids would start itching and the next day I would wake up with one or both swollen and almost closed - like a black eye. I've seen an eye specialist twice and my eyes are fine - she said allergy. I have now seen several allergists and they agree with the 1st diagnosis. I have had patch tests which show an allergy to fragrance mix (which seems to be in everything - though I use fragrance free products now whenever possible) and have been prescribed numerous creams that failed miserably. 1 cream that works is dermatop but that leads to red cheeks, dry nostrils and chapped lips. I also got another check with my CLL specialist and my blood results are stable. He says that it is not connected to CLL. When I asked what it could be, he wasn't interested and told me that he is a leukemia specialist - as if I should be an expert on medicine. As you can imagine, I'm changing doctors. This week I went to see another allergist and she has prescribed Protopic. I'm not so sure about this and I don't want to go back as the hospital charges a fortune just for a 5 minute consultation. I was wondering if anyone (a) had had a similar problem with similar symptoms (b) had tried protopic or (c) had any general advice. Thanks.
Eye and facial problems - CLL or some... - CLL Support Assoc...
CLL Support Association
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