Letter to GPs and Haematology Teams in UK, concerning Covid vax efficacy

[ChristyAnne_UK]

Sorry for not posting this sooner; I assumed everyone would know about this (from about 5 days ago), but it only became apparent that it was news in an earlier thread that many may have missed.

Here's the letter:

media.bloodcancer.org.uk/do...

[Poodle2]

Thank you, I will share it with my local MP as I have been trying to advocate for the use of monoclonal antibodies in the UK. Hopefully they will come up with an alternative for those who did not produce any antibodies. I also feel that blood cancer patients should be offered the antibody testing after they had their vaccines as you might be aware of how much of a risk you are still under if you knew your results. It's my experience that consultants in big trusts/teaching hospitals are not opposed to it but they don't really offer it to patients. My local haematologist did not want to do the test as he did not know "how to order it on their computer system"...absolutely shocking and simply not good enough. I will share my experience with her on this too. Thanks ❤

[ChristyAnne_UK in reply to Poodle2]

Thank you. It’s great to hear you’re doing that. I’ve been thinking of starting an organised campaign to end the wall of silence from the media/govt. Not so much a campaign of civil disobedience… more a campaign of being a blessed nuisance! Lol 😆

[Belfastbees in reply to ChristyAnne_UK]

I think as most in this thread do, it seems there is no data but it's hard to comprehend how that can't have been assessed to inform those most at risk at this stage. Of particular interest to me, and many I'm sure with other comorbidities, would be the detail of new cases, or even just hospital admissions, where covid positive is identified in double vaccinated patients. In trying not to worry, look at the half full glass perspective, I do consider it likely that many of these people may be vulnerable. The ratio of these would be telling I think. Coincidentally there was an outbreak many months ago at a haematology unit in a local (NI) hospital which went on to kill about half of those that caught it. I understand patient confidentiality is important but this was never reported much. My knowledge is anecdotal through a friend of a friend whose father died at 75. This was at a time before the emergence of variants which are now perhaps twice as transmissable. I think that means that the same measures may not work, at least to the same extent, and initial exposures need not be as great to have a similar outcome. I do feel as well that the country rarely thinks of those maybe not protected by vaccine and the message that we need protected is a good reason for everyone to be vaccinated. This could be presented more robustly by gov and media.

[ChristyAnne_UK in reply to Belfastbees]

Totally. 👍

[Bubnojay]

Thank you for sharing I will see if I get a response from my specialists.Bubnojay

[bennevisplace]

Thanks for posting this again under its own banner. I wonder when it was sent out and to whom. I've never received any Covid-related advice from my haematology unit or GP, only from Dept of Health and Public Health England re shielding.

Since you too are minded to start a campaign I'll message you and we'll see where that takes us.

[ChristyAnne_UK in reply to bennevisplace]

Great! I look forward to hearing from you! Re. when letter was dispatched (despatched?), the FB post was dated 16th June. I don’t suppose they hung around before sharing it.

[annmcgowan]

Hi Christy Ann thank you for sharing this important information. I have e mailed my local MP about this and am awaiting a reply.Ann

[ChristyAnne_UK in reply to annmcgowan]

Fantastic, Anne! I am going to be starting a campaign group on FB soon, to start making some noise about our situation. I’ve just had a reply from my MP this afternoon, forwarding a reply from the Dept of Health that I asked for in March… total standard letter, with zero understanding of our issues. 🙄 The air in my house right now is blue!!!

[annmcgowan]

I bet the air is blue!!! I am not on FB but would be interested in your campaign.Ann

[ChristyAnne_UK in reply to annmcgowan]

Oops! Apologies for spelling your name incorrectly. x

[annmcgowan]

No problem most people do.Ann