Another Update: Hi all I hope to find you well... - CLL Support

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Another Update

2017cll profile image
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Hi all I hope to find you well, this is my update so I start with Retuximab on 16 and 17/11/2020, first day a small dose it token about 3 hours the second following day it token 5 hours so far no visible downs, let's hope it stays like that, away forward.

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2017cll profile image
2017cll
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bennevisplace profile image
bennevisplace

Hi, it's normal to start Rituximab infusions slowly. Subsequent infusions will be faster.

Are you still taking Ibrutinib?

2017cll profile image
2017cll in reply to bennevisplace

Hi yes 420mg till I die or my body refuses it as per doctor info, but last night I have add a big sweat apart from that everything is good.

bennevisplace profile image
bennevisplace in reply to 2017cll

Night sweats are one of the side effects listed with Rituximab. Some members have reported chills or fevers shortly after commencing the infusions, but no issues later on. That was my experience.

I hope you continue to have mild/ manageable side effects and good results from this treatment.

Canuck901 profile image
Canuck901

You’re on Rituximab and Ibruntnib? How’s that going so far ?

2017cll profile image
2017cll in reply to Canuck901

Hi thanks for the reply's, to Canuck901 yes Retuximab and Ibritinib so far everything is manageble but I only have 4 weaks in the treatment, so the list in my case 4 weaks ago start Ibrutinib to suport I sart taken Alopurinol/Zurim, after 4 weaks as per my doctor start Retuximab for 6 months others medecines to suport Folifer, Aciclovir and Cotrimoxazol/Ratiopharm, for now will see as I go, good helth to all.

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