Pentamidine nebulisers

[Grannajan]

For those on Pentamidine nebuliser treatment - is anybody able to have this treatment at home ?

[lankisterguy Volunteer]

Hi Grannajan,

Here is a link to the 14 other postings that mentioned Pentamidine or nebuliser

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healthunlocked.com/cllsuppo...

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I have not searched through the postings, so you may want to scan them to see if there is useful information in the replies, beyond your two postings.

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Len

[devonrr]

Yes. The hospital loaned me a machine. The clinical haematology nurse came out to my home to choose an appropriate room and went through the process with me. Depends on the Health Authority if you are in the UK.

It was easier for me to have the treatment at home rather than use a room at the hospital which then had to be put out of use for several hours whilst all traces of the drug disappeared.

Good experience.

[Grannajan in reply to devonrr]

Hi. Very interested to read your reply. Which hospital are you under ? I’m at the West Suffolk in Bury St Edmunds, Suffolk

[devonrr in reply to Grannajan]

Devon Health Authority in the South West. This was 4 years ago and I was trialling that it could be done at home. It was successful.

[olyocl]

In 2016 i had a course of Pentamidine nebuliser but I had it at the hospital.

[bigunwill2]

I go to clinic once a month for treatment and have for over a year.