I forgot to discuss weight loss with my Consultant in my recent telephone call. I am now 53.5k and was probably about 63k before CLL. I am feeling ok otherwise and recent bloods were 137 white count. I am W&W. As a 5’6” female - how much weight should I be allowed to lose before treatment starts? Any ideas?
Weight loss: I forgot to discuss weight loss... - CLL Support
Weight loss
Good Morning!
10% - an unintentional weight loss of 10% or more is important to tell your Haematology Team. You would appear to have that.
I would suggest you contact your Haemaology Team, CNS or Consultant secretary and let them know.
Your GP would also have a role in this - as there are many causes for wt loss unrelated to CLL.
Wishing you well.
Jig
Hi camper
I'm a female almost exactly the same height as you - though here we are now into metrics.
I lost 10 -11 kg over the last year and a half. ( about 4 dress sizes) down. GP was not interested, so I had to ask her to weigh me and record it; Haematology here always weigh everyone but all my bloods were reasonably OK (on Ibrutinib ) so for me there was nothing further they felt it necessary to do.
But I agree about reporting it to relevant medical people.
Good luck. 😊
I never knowingly suffered unexpected weightloss.. except, with steroid+blood thinning treatment for PE..
At that time, a few weeks pre- start of BR (Bendamustine + Rituximab) treatment, my consultant was keen that I gain weight — presumably as a buffer, in case of loss of appetite/nausea/sickness during treatment..
Happily treatment saw very little nausea, so I was lucky.
One year later, with lockdown eating habits.. I have gained far too much weight..
Now 3 weeks in to weight loss regime (low carbohydrates, sensible size meals, maybe 5:2 type diet, ie. 2 days of ~700 calories, 5 days of eating normally) and I have lost 5 Kg.
Talk to your consultant / lead nurse / haematology team.