CLL Society & Clinical Care Options created a Patient Decision Support Tool

[bkoffman]

The CLL Society + Clinical Care Options created this Clinical Care Options Interactive Decision Support Tool

! Check it out: clinicaloptions.com/Oncolog...

[SethB34]

Man this is a really cool tool! I hope it gets around because it will really help.

[Zia2]

So it’s only for those in treatment if I read the first question correctly.

[debdetermine58]

THANK YOU!!!🤗bkoffman For this Awesome Interactive Tool !!! BRAVO !!! To the CLL SOCIETY & CLINICAL CARE!!!👏👏

[gardening-girl]

Dr. Koffman, I just tried using the Patient Decision Support Tool and was frustrated because the tool did not allow me to enter correct information due to the limited responses from which to choose.

-For example there were only 3 options for treatment settings: Newly diagnosed (first-line therapy), Second-line therapy or Third-line therapy. I'm in my 5th-line therapy.

-The choices for second-line therapy were limited to BTK inhibitor, Venetoclax-based therapy or PI3K inhibitor–based therapy. Again, no way for me to answer that question correctly. My second line therapy was FR.

-The choices for answering "Why did you discontinue your second-line treatment?" were limited to Intolerance or Progression. I discontinued second-line treatment after the scheduled 6 month treatment because I was in remission.

-There was no question asked about third-line therapy even though the following statement appears relative to treatment history, and one would think that providing information about third-line therapy (current according to the choices available) would be more important than info about the second-line therapy:

To quote: "Moreover, the specific agents used in previous therapy will be considered to help guide selection of subsequent therapy."

If that is truly important why are the choices limited to BTK inhibitor, Venetoclax-based therapy or PI3K inhibitor–based therapy? And, why was their no inquiry about what was being used in third-line therapy?

Considering that the tool might not be working properly using Safari, I tried using the tool with Firefox, but the format was identical.

There was no way to skip a question, so in my case incorrect information had to be entered in order to proceed to the specialist's recommendation. In my case I don't really need the tool, I was simply curious to see how it worked, and as I said, I found it to be very frustrating.

gardening-girl

[bkoffman CLL CURE Hero]

I will pass on your comments to the developers Thanks for the feedback and sorry about the frustrations.