Richter syndrome. Ganglion below the neck - CLL Support

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Richter syndrome. Ganglion below the neck

Priss69 profile image
30 Replies

Hello friends

A month ago I wrote, because a small node had grown out from under my jaw. I did an ultrasound and they found a 4X3 millimeter node. Do not call my hematologist because I have a consultation in two weeks. I took antibiotics and I have not left. I had fungus in my mouth that I'm treating. The node has no longer grown, but continues in the same place.

Do you think it could be the Ricthert?

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Priss69 profile image
Priss69
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30 Replies
lankisterguy profile image
lankisterguyVolunteer

Hello Priss69,

-

While we understand that you are concerned, what you are asking for is Medical Advice and we may not offer opinions like that. You need to consult with a doctor.

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If you have worsening CLL like symptoms, fatigue, fever, etc. you may want to consult with your doctor's staff by phone to see if they want to move your appointment earlier, or seek help at an Emergency Room (USA name) or A&E (UK term) to diagnose the cause of your node.

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Len

Priss69 profile image
Priss69 in reply to lankisterguy

I have a consultation in two weeks with my hematologist. I spoke to my hematologist from Spain who was treating me previously on the phone and he said that the lymph nodes below the jaws are not important. Also talk to people who have relapsed with diffuse B lymphoma and they say that the nodes grow very fast and mine don't. That is why I do not understand. I think it is a cancer node, but I don't know if it is because of the breasts, my Leukemia or my lymphoma. I feel good, it is what I do not understand.

Newdawn profile image
NewdawnAdministrator

Hi Priss,

Len is right and I can imagine your consult with your doctor can’t come fast enough. It’s awful to feel worry like this. What does sound promising is the very small size of this node which hasn’t grown over a month. Plus you’ve needed treatment for fungus in your mouth which could explain it.

Sending you best wishes that it’s an innocent node which will disappear over time.

Best wishes,

Newdawn

Priss69 profile image
Priss69 in reply to Newdawn

The ganglion is the same, it has not grown anymore. I am happy because it does not grow. Thanks a lot for your support.

flipperj profile image
flipperj

My hematologist said the same to me about the lymph below the jaw. Dismissed it as not being important. The lumps do bother and concern me though.

Priss69 profile image
Priss69 in reply to flipperj

Did they tell you why it came out?

DriedSeaweed profile image
DriedSeaweed in reply to flipperj

Lymph below the jaw is how they discovered my SLL!

Any chance they can bump you up sooner than 2 weeks? Given your history there should be a sense of urgency. Maybe if someone cancels they could call you immediately?

Priss69 profile image
Priss69 in reply to DriedSeaweed

I have Chronic Lymphocytic Leukemia. I only have the ganglion under the small jaw but they have not come out anymore for the rest of the body. My analyzes go well. I could call hematology, I don't know if the situation would change. Leukemia doctors are not concerned but the lymphoma that is difficult to take into remission.

Priss69 profile image
Priss69 in reply to DriedSeaweed

When a node is smaller than a centimeter is it considered abnormal? It measures 4X3 millimeters but it hurts when I touch it.

DriedSeaweed profile image
DriedSeaweed in reply to Priss69

I really have no idea how to qualify a node being abnormal. If I were in your shoes I would see if the 2 week wait could be shortened.

Usually my node pain is more of dull aches. Maybe others can relate to painful to touch.

Priss69 profile image
Priss69 in reply to DriedSeaweed

The pain is as if someone is squeezing the node and that node is pressing. I had that feeling when I was diagnosed with Leukemia. I was now in remission from Leukemia. Anyway, my leukemia and treatment was for swollen glands. I got to have nodes like oranges on my neck.

AussieNeil profile image
AussieNeilAdministrator in reply to Priss69

The primary purpose of lymph nodes is to provide a site where the bugs causing infections are analysed by our lymphocytes to find a way to make antibodies (also called immunoglobulins) to fight them. That process results in specially selected B-lymphocytes that are able to make antibodies against the infection being encouraged to multiply, so the node grows in size to hold the newly made lymphocytes. This is why we get swollen glands or nodes when we have a cold and yes they hurt if you press on them. (A ganglion is a nerve cluster, which is totally different). After the infection has been cleared, the node gradually shrinks back to its normal size. This is why Newdawn said "Plus you’ve needed treatment for fungus in your mouth which could explain it."

See: medicalnewstoday.com/articl...

The relevant guideline for starting CLL treatment is nodes growing to 100mm in the longest dimension. Under 10mm is generally not considered a matter of concern, but you are wise to have yours checked out by your specialist. If it begins to grow again, then ask to see your doctor before your appointment.

Neil

Priss69 profile image
Priss69 in reply to AussieNeil

It is that I have a consultation on the 12th and in a month and a half it has not changed in size and it is the same. Hospitals are full of Coronavirus problems and doctors do not want or pour it unless it is an emergency. They are announcing chemotherapy treatments in Europe for the Virus. They only treat acute leukemias. I still treat myself for fungi and it grew from a drop in defenses. If it is from Leukemia I stay calm because I know it can be controlled. What really scares me is a relapse of aggressive lymphoma. Talk to people who have relapsed lymphoma and they say it grows very fast. My pain is like I have a finger pressing on my node.

AussieNeil profile image
AussieNeilAdministrator in reply to Priss69

Richter's nodes do grow very fast, which is why I said you should see your doctor before your appointment if that node begins to grow again. It's good news that it hasn't changed. Swollen nodes due to infections are painful if you press on them.

Priss69 profile image
Priss69 in reply to AussieNeil

In a month and a half it did not grow and stayed the same size. I pray that it is only an infection or Leukemia. I used to take Ibrutinib before. After RCHOP I went into remission and they told me I didn't have to take it. I always look at my neck, armpits and groin and I do not have any node, only the one below the neck.

I only have 10 days left to see my hematologist.

MsLockYourPosts profile image
MsLockYourPostsPassed Volunteer in reply to AussieNeil

I think that there is a translation issue here. Ganglios linfaticos in Spanish are lymph nodes. My auto correct will change ganglios to ganglion.

Priss69 profile image
Priss69 in reply to MsLockYourPosts

Exact. It is that I use a translator. Ganglion is node.

I am also being treated for fungal in my throat. The same node was bothering me. The fungus is just about cleared up, but I know how you feel about someone pressing on it. It is slowly starting to calm down as the fungus gets resolved. I have CLL. Take care, also that it has not grown sounds very positive to me. I actually think I had the fungus for quite a while before getting really bad. I've also have some teeth problems in the same area.

Paula

Priss69 profile image
Priss69 in reply to

Do you have it in the same place as me the node?

Yes sounds to me like the same place.

Priss69 profile image
Priss69 in reply to

The hematologist who told you?

in reply to Priss69

Yes my CLL doctor.

cll2013 profile image
cll2013

I had a similar node in the same place that was removed. Turns out it only contained regular CLL cells. Concern for the big "R" was there prior to the surgery, but much relief came with the lab report. I hope yours is the same.

Priss69 profile image
Priss69 in reply to cll2013

I guess they biopsied it right?

cll2013 profile image
cll2013 in reply to Priss69

Absolutely .

Priss69 profile image
Priss69 in reply to cll2013

I guess they will do it to me too. On the one hand I am calm because it has not grown anymore and it only hurts when I touch it but on the other hand I am afraid that it may be the Ricthert that is returning. If it is Leukemia I am not concerned because it can be treated.

cll2013 profile image
cll2013 in reply to Priss69

Best to find out. I think by now you would be able to tell yourself if it was Richter's, so I think you can relax a little. Best wishes.

Priss69 profile image
Priss69 in reply to cll2013

Thanks a lot

Mogal profile image
Mogal

Could the enlarged lymph node be a reaction to the fungal infection in your mouth? Often these neck nodes react by enlarging as a way to control colds and mouth growths. Let us know what your doctor says.

Priss69 profile image
Priss69 in reply to Mogal

Of course I plan to say it. The idea is to share my case. There are few Ricthert and unless my experience serves others. My lymph node grew at the same time that I had a drop in defenses and mushrooms came out.

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