I just wanted to let you know that Martyn lost his battle on Wednesday. He passed away surrounded by all his family. I know he enjoyed communicating with you all and thank you for all the support you gave him.
Best wishes you all - Martyn’s Family xxx
Written by
MartyR
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I am so sorry to read this. I read many of Marty’s postings on here since I joined the site. He took on Cll with great dignity and positivity for quite a long time and was an inspiration to others. Thanks for letting us know he passed and condolences to you and his family. Jeff
Thank you for letting us all know. I send my condolences to his family and friends. I admired Martyn's strong faith and his confidence in hope ahead. And his approach to his final months was beautiful and inspiring.
I'm so sorry to hear this but take comfort in the fact that Marty is no longer suffering. Please accept my deepest sympathies. We are all thinking of Marty and his family today.
God Bless you and the entire family!!! This kind of news is not what we like to hear....we know all to well the heart ache involved for all of his people
MartyR and I exchanged some scripture before that gives me confidence that he is in glory and would tell all of us that truly as Ecclesiastes 7:1 from the Old testament says.... "better...the day of death than the day of one's birth."
I have been following him on this site for many years and will see and speak to him again. Yet that does not remove the present pain of his lost.
Thank you for letting us know. I admired greatly the way he faced things with such dignity. Your family must be very proud of him. My sincerest condolences to you all.
I am so saddened to hear this news. 💔 Your family is in our thoughts and prayers. I was happy to call him my brother in the faith . He was truly encouraging. His faith was strong and an encouragement to many. We are heartbroken and yet thankful he shared his hope found Revelation 21:3-5 and Psalm 37:29. May the God of all comfort wrap his arms of comfort around you at this sad time. ❤️
So sorry for your (and our loss). His was a sweet and gentle spirit and I appreciate that he and you allowed us to know how he was fairing in the last days. Thank you for letting us know and may your days ahead be times of rest and care for each other.
I'm sorry to read this , so sad. I will be praying for the family. I feel confident though that he has prepared his heart to meet Christ which gave him peace and assurance.
I am devastated though not surprised to hear the news.
Martyn was my friend, though we never met in person. He was a source of inspiration and information. I will miss him forever.
I would like to share my last private message with him to you. I feel he would have wanted you to know things that perhaps he couldn’t share at that time.
Jeff
“Marty,
How’s life treating you lately. I miss your insights on the forum. I started on ibrutinib. So far so meh, but hanging in there.
Jeff
4 months ago
MartyR
Hey Jeff,
Thanks for your note and it’s nice to hear that you appear to be in good spirits and still taking the tablets... Before I replied to you I “googled” the pictures of the Caucasus Mountains and just imagined what living in your log cabin must be like - this time of year. The scenery must be amazing and the air must be so crisp and fresh. (Rather than the British polluted, foggy, contaminated, air.)
Anyway as my couple of posts recently - (When the CLL Treatment Finishes.) - I’ve gone past my Consultant’s prognosis of six months from early March, with my general blood levels being stable - except for my WBC which is gradually increasing without any CLL Treatment. I have been offered Venetolax but the procedures, hospitalisation, and risks to me are outweighed by the the quality of life - cuddling and playing my grandkids, hugging my wife and daughters and just standing up to what comes next....
My consultant has put me on a course of Predisolone and I have the “Respect Form” signed and in place. Which gives us the comfort that my family and I need.
I will see my Consultant in a couple of weeks - making it 9 months - with the main change being TIREDNESS - but I’ve been be able to do a number of things from my “Bucket List” - Attending British Grand Prix (F1), Rock Concert with a Queen Tribute Group, Various Car Museums, Long weekends away with my wonderful Wife, Steam Train Trips........ generally just enjoying life - one day at a time.
Jeff, I know we have so much in common looking at your profile - a devoted wife who understands our disease, both having been on the B+R+Idelaslisib / placebo trial, remissions, - and still we fight on .....
So what’s new with you - how’s the Ibrutinib working... (this has never been on my drug list - because a known side effect is skin / rash - and I’ve always suffered from Eczema.)
Marty's positive outlook, love of family, faith in God and willingness to help others jumped off the pages of this forum. It was apparent he was a special man. He will be greatly missed by so many. May God bless Marty and his family.
Thank you for sharing this sad news. Members of this site become closer friends, in some ways, because of shared understandings, than many of the people who we cross paths with daily. My thoughts are with you as you work through this loss.
Really sad to read this. It is perhaps worth stressing however for the new folks around here that he was diagnosed back in 2001 - full nineteen years ago and had quite an aggressive illness (in that he needed treatment straight away). He was also treated with chloramabucil initially and later with other forms of chemo. And by the time it was possible for him to receive the newer agents he just felt that he was too unwell to do that. But nineteen years with a CLL which needed treatment straight away on the basis of older treatments should help us to see that long life with this condition really is possible. Those who go before us like him have helped doctors figure out the best way to treat us so we owe them a great debt. As well of course as the huge contribution he made on here before many of us newbies had even a clue what CLL stood for.
It is always too early when someone leaves us. And it’s only right that it hurts. Marty had a faith that helped him hugely through all this, and firmly believed that he would now be in a better place.
People sometimes say this site is full of bad news and difficult times, but there is also good news too. And I hope that some of Marty’s old hope filled comments will continue to inspire future generations of CLL patients when they stumble on them here.
My deepest condolences to family and friends of Marty.
I follow his posts, which were very interesting and showed his love for his family and enjoying his grandchildren. It showed his gentle and caring soul.
I went back and read some of Marty's more recent posts. What a strong, loving and spiritual person he clearly was. My deepest condolences to his family and friends. Sending you prayers for strength and may you find comfort in a lifetime of wonderful memories.
My deepest condolences on the passing of Marty. He was really a very good person and will be missed on our site . Thank you for letting us know of his passing.
I was very sad to hear the news of Marty’s passing away. My deepest condolences to you all. It was good of you to take the trouble to let us know.
We knew Marty was expecting this, but he kept a wonderfully positive attitude through it all. It was clear that his faith made all the difference to him and that was an inspiration to me, as I’m sure it was to many others.
Wishing you solace in happy memories, as you work through your loss and grief.
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