Richter’s Transformation - Preliminary results... - CLL Support

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Richter’s Transformation - Preliminary results of the clinical trial with Mosunetuzumab

Priss69 profile image
12 Replies

Preliminary results of the clinical trial with clinical Mosunetuzumab at the ASH2019 congress. The recruitment of patients with relapsed / refractory Richter lymphoma and with transformed follicular lymphoma has begun.

docs.google.com/document/d/...

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Priss69 profile image
Priss69
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12 Replies
cajunjeff profile image
cajunjeff

Those are very exciting results Priss. Thanks for posting, I had not heard of mosunetuzumab before. Any drug with a name that hard to pronounce or spell ought to be good.

Priss69 profile image
Priss69 in reply tocajunjeff

Information is coming directly from a hematologist. He is a researcher. Dr. Carlos Panizo Santos.

Mystic75 profile image
Mystic75

Thank you, Priss, for sharing this very positive news.

I hope you and and your friend are doing well. (I can't remember his name but the two of you recently traveled together and now I can't find the post.)

Big hug,

D.

Priss69 profile image
Priss69 in reply toMystic75

Hi.

Yes. My friend Ayose, who also has Ricther. He's fine and me too. I live with panic until the disease returns. Last week a boy died with only 31 years of the same. I knew him and I felt very bad. He was given the Cart and it didn't work out. It is an agony to think that I can come back again.

Smakwater profile image
Smakwater in reply toPriss69

Press, I am sorry about your friend Ayose.

This is why we all need to stay together on this and be the voice that drives research.

DR. Koffman is so right when he says "Stay Strong, We are all in this together".

Thanks for taking this on,

JM

Priss69 profile image
Priss69 in reply toSmakwater

Ayose is well. The deceased has been a boy who had diffuse lymphoma B of large cells. He was English.

Smakwater profile image
Smakwater in reply toPriss69

Sorry, I misunderstood. Glad for Ayose though.

Mystic75 profile image
Mystic75 in reply toPriss69

So glad that your friend Ayose is doing okay but am very sorry about the young man who passed. It is so hard to deal with this. I think one of the biggest challenges is managing our fears. The fears are so justified to have, yet they are like thieves robbing us.

I think you've been incredible. You are always proactive and are obviously a very caring person. Ayose is very fortunate to have you as a friend and we are so fortunate to be able to share your posts.

Priss, please know you are in my thoughts and I am hoping fervently you can be relieved of this burden of worry. You have many people rooting for you!

💖

D.

Priss69 profile image
Priss69 in reply toMystic75

I try to help people who are going through the same thing that I am going through. I always live with the fear of a racaid. I am not afraid of leukemia. I am afraid of lymphoma. It terrifies me. All doctors say it's hard to cure. They are very negative. That's why it's important to be all together. They say that union is strength.

Mystic75 profile image
Mystic75 in reply toPriss69

Priss, it is so true - union is strength. You know, you are more than terrified - you are also very courageous...and you can't have courage without fear. Courage can be a very powerful asset. It is obvious that it is a driving force for you.

I'm so glad you are on the forum. Hang in there. 💕

Big hug,

D.

Priss69 profile image
Priss69 in reply toMystic75

I have been with Leukemia for two years and one year with my Lymphoma. I plan to help with my testimony. I hope to live many years to be able to tell.

Thanks for your support.

Mystic75 profile image
Mystic75 in reply toPriss69

Thank you for all you are doing, Priss . What you are doing is so important! 💕

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