hu CAR-T 19 IL-18 TRIAL 14 DAY BMB REPORT AND DR. VISIT DAY 21

[steve5441]

I knew it was coming, a going away gift for being such a great patient. A BMB is ordered at day 14 of this clinical trial, groggy from 1mg of atavan earlier that morning, I am not even going to make jokes about it. This is a necessary test to see what is going on with the infusion of my new armored piercing and thermal nuclear T-Cells. When Dr. Svoboda walked into the exam room this afternoon he had a big smile on his face, he quickly told us that there are NO CLL cells in the marrow or blood. SHOCK and DISBELIEF to say the least, he said this was one of the fastest responses they have had on the study, 14 days. I am still going to do a post on my hospital stay, but right now, even I have nothing left to say.

[HopeME]

Wow. A touch better than the 65% you had after the last treatment you went through. Congratulations! You must feel on top of the world!!

[steve5441 in reply to HopeME]

I'll say it's much better! If I am not at the top, I'm very close.

[Justasheet1]

WooHoo!!!! Congrats!!!!

Jeff

[steve5441 in reply to Justasheet1]

Thanks Jeff, appreciate your interest.

[Agiledog]

Just absolutely marvelous! Nice going! Bud

[steve5441 in reply to Agiledog]

Thank you so much.

[country76]

Fantastic!!!! Congratulations!!

[steve5441 in reply to country76]

Thanks for the interest.

[Fran57]

That’s wonderful news!😉

[steve5441 in reply to Fran57]

Yes it is, we love it.

[CLLCalifornia-USA]

Thanks for such wonderful news. Prayers still coming your way. Sally 🙏

[steve5441 in reply to CLLCalifornia-USA]

Sally, thanks for the prayers.

[nvp815]

Congratulations Steve on this successful outcome! That is absolutely fabulous news. I am extremely happy for you.

Nan

[steve5441 in reply to nvp815]

Thanks so much # 3. We both know this was no stroll in the park, but the results so far have been rewarding. How are things with you.

[nvp815 in reply to steve5441]

Totally agree…the results are worth the difficult journey! I am doing well. I have some GI issues that I never had before that are intermittent but started right after CAR-T. They just stopped the antifungals and antibiotics so hopefully GI symptoms will resolve. But otherwise, I can’t complain #5. I am so grateful we both were given this opportunity to finally achieve remission. Sending only positive thoughts and best wishes to you.

[steve5441 in reply to nvp815]

My stomach is still jacked a bit too. It was really in knots after yesterday's news. My ANC is .9 so I am being overly cautious about wearing my mask.

[nvp815 in reply to steve5441]

I do the same as far as masking! My ANC fluctuates as well. Eventually hoping it stabilizes. In the meantime, I don’t leave the house without a mask. Stay well and be kind to yourself as you regain your strength. 💕💕

[Poodle2]

Amazing!!! You must be over the moon 🙂👍🏻

[steve5441 in reply to Poodle2]

Heck I am over Mars.

[Poodle2 in reply to steve5441]

🤣👍🏻🤣

[very]

Great news.

Jenny uk

[steve5441 in reply to very]

Thanks Jenny

[Bubnojay]

Oh Wow! Enjoy!

[steve5441 in reply to Bubnojay]

Enjoying it already.

[Thursday45]

Just brilliant!

[steve5441 in reply to Thursday45]

Yes it is.

[Cindi73]

Congratulations! That's great news.

[steve5441 in reply to Cindi73]

The best I have had in a while.

[LeoPa]

Amazing. Did this wipe out only the CLL or the healthy b cells too?

[steve5441 in reply to LeoPa]

A bit of healthy cells, but they are improving.

[hope-73]

Excellent news! So happy for you!

[steve5441 in reply to hope-73]

Thanks so much.

[Osprey69]

Steve from your shadow I am so happy for you 🙃 Will be interested in your follow up note but for now congratulations and enjoy. Fran

[steve5441 in reply to Osprey69]

Thanks so much Fran, good luck with your continuing journey.

[Ghounds]

Congratulations!

[luckyboy-2]

Amazing - what a result!😀👍. Enjoy. A BMB? A small price to pay😨

[steve5441 in reply to luckyboy-2]

Thank you , yes in the grand scheme of things, it is a very small price.

[Sojomama13]

Yay!!! Doing a happy dance for you.

Best!

Sandy

[steve5441 in reply to Sojomama13]

Send the video !!

[Katinlr]

Great news. You should spend some time just savoring it!

[steve5441 in reply to Katinlr]

Don't worry, I already am. Thanks so much .

[Stamphappy]

Steve, that is amazing news!!I'm so thrilled for you!! Thank you for sharing your wonderful news and increasing my own hopefulness too. God bless you and give you strength. I'll certainly be watching for your next post. 😊 Congrats.

[steve5441 in reply to Stamphappy]

I will always share any updates that I think are a value to the site. Thanks for the kind words.

[CycleWonder]

Your results are wonderful news. But happening on Day 14 is amazing news! You can dance out of the hospital!

[steve5441 in reply to CycleWonder]

Yes they are, and if I could dance, I would have done the boogalo right out the hospital door.

[Analeese]

What awesome news. Congratulations!!!!

[steve5441 in reply to Analeese]

Thanks so much.

[Feldman]

Wonderful! I’m so very happy for you. 🥳🎉

[steve5441 in reply to Feldman]

Thank you.

[spi3]

Congratulations and ty so much for being a true warrior and keeping us all informed! You have given many of us hope too! God bless you and I am praying for your continued success

[steve5441 in reply to spi3]

Thank you for the kind words. I just did the best i could.

[laurieq]

This made my day!! Thansk for sharing!

[steve5441 in reply to laurieq]

Thank you and best of luck to you guys too.