CLL under 30

[Courtney151]

Hi, I’ve seen a post about young people being diagnosed with CLL and this appears to be people in their 30’s. I’m wondering if anyone has any information on under 30’s? My boyfriend was diagnosed at 24 and from all my research this appears to be extremely rare so any information anyone has will be great. Thank you

[AussieNeil Partner Administrator]

The percentage of those developing CLL in the age bracket 20 to 34 is 0.3% in the USA, so yes your boyfriend's situation is rare:

seer.cancer.gov/statfacts/h...

We do have some young members, I think our youngest was diagnosed at 18. I hope that they respond.

Neil

[Marie_paul]

My niece was diagnosed at 23 ...sll ..

[Sushibruno in reply to Marie_paul]

How is your niece doing?

[Marie_paul in reply to Sushibruno]

She is not responding to chemo but every case is individual...

[Jm954 Administrator in reply to Marie_paul]

Sorry to hear that about your niece Marie Paul

[Pooldude05 in reply to Marie_paul]

Are they going to try Venetoclax or Ibrutinib?

[Marie_paul in reply to Pooldude05]

No it s not funded at my country .... We are heading to stem cell transplant

[Pooldude05 in reply to Marie_paul]

My prayers are for it to be curative and your niece to live long healthy life . Joseph

[Marie_paul in reply to Pooldude05]

Thanks Joseph ....we truly need those prayers

[Billhere]

cllsociety.org/

[J_88]

I was diagnosed at 30 years old but probably had it when i was in my late 20s.

[Courtney151 in reply to J_88]

Can I ask what your journey has been so far? I feel like we’ve just been left to carry on with not much information or concern about how young he is.

Have you needed any treatment?

[J_88 in reply to Courtney151]

So far I am doing ok, no symptoms really. Some fatigue here and there. Still think about it often. Worried about my life expectancy to be honest. I have had no treatment so far i am still in watch & wait.

[MsLockYourPosts Passed Volunteer]

Courtney - How is your boyfriend doing?