Question about your experience with aloe vera

[Ankakoza]

I have CLL for 5 years, no other symptops but high WBC, 105 000, doctora are about to give me chemo. I also have EDS, and Cusack Protocol reccomends aloe vera, isn't it the risk of increasiing number of leucocyts ? Anyone knows ?

[AussieNeil Partner Administrator]

The Natural Medicines Comprehensive Database "is a reliable source of information about natural remedies, rating them for safety and effectiveness and providing links to the scientific studies that its ratings are based on. It doesn’t give aloe vera any ratings of “effective” or “likely effective” for any condition."

Also the National Center for Complementary and Integrative Health (NCCIH) says “There’s not enough evidence to show whether aloe vera is helpful for most of the purposes for which people use it.”

sciencebasedmedicine.org/al...

Ehlers Danlos Syndrome is a terrible condition to live with, given it can have such wide ranging impact on your health. I hope you only have it mildly.

Neil

[Ankakoza in reply to AussieNeil]

Yes, I do have mildest form, just hipermobility of joints, but during last year I do notice slowly progressing mucsles weakning , without loosing weight. Cusack Protocol seems reasonable complementation to słow the progres Hence my question, thanks

[AussieNeil Partner Administrator in reply to Ankakoza]

Pleased to hear you have the mildest form. When I found out about the connective tissue disorders of EDS and Marfan's syndrome, I did wonder how many contortionists have one of these conditions.

There are the usual claims without much basis for aloe vera and leukaemia, so I suspect it isn't likely to affect your CLL (and I applaud you asking). Here's one reliable evidence based resource regarding the evidence for other claimed medical uses:

mskcc.org/cancer-care/integ...

Just be aware that with the unregulated nature of the supplement industry in most countries, it seems you often don't get what you think you bought, so if you want to try it for your EDS, I strongly recommend you grow your own plants:

healthunlocked.com/cllsuppo...

Neil

[Ankakoza in reply to AussieNeil]

If I would take it it would by from my own plant, but I'd rather stick to alternative to aloe- Maitake. This protocol is a synergie of noumeros supplementation , None so controvercial as aloe.

I found it helpful to have a feeling that something depends on me, instead of beeing helpless victim waiting for the moment that blood test will be worse. In my country the newest chemo is not refunded, Car-T doesn't exist, and doctors attitude is - doesn't matter what You eat.

[AussieNeil Partner Administrator in reply to Ankakoza]

Memorial Sloan Kettering Cancer Center on Maitake:

mskcc.org/cancer-care/integ...