CLL Specialist in California

[Rivergoddess]

CLL Specialist in California needed. I live in Northern California so I’m looking for the closest one possible. Thank you and blessings.

[cllady01 Former Volunteer]

Here is the link to CLL Society --look for menu at bottom of into page.

cllsociety.org, choose "CLL Doctors"

[Jogging4life]

Dr Kao is excellent! Trained at Stanford

Her office is in San Mateo county.

[Jcalichi]

Dr Bita Fakhri is the top expert at UCSF — cutting edge researcher and excellent clinician. I’m early in my CLL journey but couldn’t be more pleased. Great bedside manner too. Where in Northern California are you?

[Rivergoddess in reply to Jcalichi]

Thank you. I live in Penn Valley, about 1.5 hours north of Sacramento in the Sierra foothills. And you?

Does this doctor take Medicare?

[Kuna123]

I’m seeing Dr. Stephen Coutre.

He’s a CLL specialist at Stanford

[Rivergoddess in reply to Kuna123]

Thank you. Does he take Medicare?Where do you live?

[kc1953 in reply to Rivergoddess]

I’m sure Stanford takes Medicare. I’m sure the majority of Dr. Coutre’s patients are on Medicare.

[Kuna123 in reply to Rivergoddess]

I’m sure he takes Medicare. I live in Pleasant Hill.

[kc1953]

Dr. Steven Coutre at Stanford. One of the top CLL Specialists and principle investigator for many novel agent clinical trials.

[haposwald]

I live in Citrus Heights 1/2 hour north of Sacramento I’ve got a great hematologist in Rocklin! I as well wanted to see a specialist. But the logistics for me I felt better to spend my time living instead of the travel with our lovely Bay Area traffic and everything along with it! If you need a second opinion I’d gladly give you my Hemotolgist’s name and number ! Stanford is the place to go!

[Rivergoddess in reply to haposwald]

Thank you. Please do give me his name just in case I need a second opinion. Have you heard anything about doctors at UC Davis?

[haposwald in reply to Rivergoddess]

916-409-1400 dr Gurvinder Shaheed mercy med group, hematologist oncologist. I could not be happier as he listens to my thoughts and concerns and gives me the time needed to discuss my thoughts and any issues I might have being a AD (almost Doctor). Hope this helps and there is the leukemia and lymphoma society here in Sac if you need anything else contact me on FB if you’d like

[Rivergoddess in reply to haposwald]

Thank you what is your Facebook name? <<FB name edited out by admin to protect your privacy>>

[haposwald in reply to Rivergoddess]

<<FB name edited out by admin to protect your privacy>>

[Newdawn Administrator in reply to Rivergoddess]

Please exchange names privately by pm. This is an open post so very unwise to give out your actual name on here. I would advise you to edit them out.

Regards,

Newdawn

[AussieNeil Administrator in reply to Newdawn]

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Neil

[Justasheet1]

I know nothing about the logistics of travel in California but UCSD has both Dr Kipps and Dr Choi. I would travel hours to see either of them however Dr Coutre is exceptional as well from what I’ve heard too.

Jeff

[Rivergoddess in reply to Justasheet1]

Thank you Jeff. Do they take medicare?

[Justasheet1 in reply to Rivergoddess]

I’m not sure but being in California, I would assume that they do.

[Waligunda in reply to Rivergoddess]

Yes, Dr. Kipps and Dr. Choi take Medicare. They are both wonderful and kept me alive for 20 years. Am now on Acalabutrinib with “spectacular” results as Dr. Kipps says.

All the best.

[Mwagner]

I live in the East Bay and go to Diablo Oncology in Pleasant Hill

[ddmo in reply to Mwagner]

Can I ask what doctor you are seeing at Diablo Valley Oncology?

[Mwagner in reply to ddmo]

Dr Robles, I’ve been seeing him every six months since he diagnosed that I have CLL. A nice man, good doctor. I recommend him.

[AuntHelen]

My husband goes to Stanford and is on Medicare.

[Rivergoddess in reply to AuntHelen]

Thank you. Does he have a CLL specialist? Who?

[AuntHelen in reply to Rivergoddess]

He has CLL/SLL. He sees Dr. Alexander Pham ( hematologist ) at the Los Gatos location.

[Hidden]

Dr Shane Dormady at the El Camino Hospital Cancer Center in Mountain View CA

[Rivergoddess]

Thank you. Does he take Medicare?

[Smakwater]

Top Guns,

Southern Cal:

DR. Susan O'Brien - Orange County

Dr. Thomas James Kipps - San Diego

Not far North:

Dr Jeff P Sharman - Willamette Valley Cancer Institute, Eugene Oregon

JM

[17Pisme]

First and foremost see a CLL specialist not just an oncologist. You need an expert and there are few if any better than Susan O'Brien, now at Irvine, formally at MDA. SWA tickets are cheap.

[Sunnyoutlook]

I live in Humboldt County & drive 300 miles to Eugene, OR to see Dr. Sharman. I'm in his debulking trial of obinutuzumab/venetoclax. I prefer the drive there vs driving to the Bay Area.

[Hoffy]

Dr Tate Shannifeld (sp?) at Stanford is very good and a CLL expert.

Be well,

Hoffy

[LIvingWell]

I'm also with Dr. Coutre at Stanford. I was told by my original Hematologist that he was the expert in the Bay Area.

[migirlusa]

I go to Dr. Choi at UCSD. He is wonderful. I fly to San Diego once a year to see him. If I have a question later, I send him a message and he gets right back to me.

Good luck.

Pam